Oh My God 😯 Three dazed and confused Cardiologis... - LUPUS UK

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Oh My God 😯 Three dazed and confused Cardiologists.

Freckle1000 profile image
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Some not so junior heart specialists just admitted they don't know what to do with me.

An angiogram showed a narrowing of the Lateral Anterior Descending coronary artery that's near two smaller branches.

I've unsucessfully tried three vasodialating medications but can't tolerate them due to constant migraines and nausea.

The initial - but somewhat confronting idea was for open heart bypass surgery due to sticky blood being a bit too fond of throwing parties on stents - and the additional thought that a bit of plaque could break away and block the smaller branches during the proceedure.

😳 Now they've discovered I have POTs due to a.......sort of ......half reasonable assumption of SLE neural damage, so the latest thought bubble is if they performed open heart surgery it might not even resolve the problem 😖

Dow !

After several visits to ERs where blood tests have shown angina attacks - I'm on low dose vasodialating meds - with some emergency angina tablets.

Any thoughts 🙃

From ' straya

X

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Freckle1000
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KayHimm profile image
KayHimm

Freckle, it has to be hard when the answers aren’t clear. I feel for you the doctors trying to do the right thing.

Right now the best thing may be for you to let it all settle in and see what they decide in the end. Sometimes they present a patient like you to a conference where all the heart surgeons and cardiologists discuss the most complicated patients.

So sorry you have to go through this.

xx Kay

Freckle1000 profile image
Freckle1000 in reply to KayHimm

Thanks Kay. You're right - I do need to let things settle in and wait.

As you know I've been in some grey diagnostic areas but I have become a bit blippy about this one. There's been some fairly constant and abstract Doctor chasing until recently.

Some rest and a bit more radical acceptance of the unknown's definately required now.

The surgeon is - as you'd expect - the most level headed of the group and said he'd consult with another cardiologist who might be better placed to help.

He's also re checking my current sticky blood levels to re - assess the options.

I am reassured that he's working on a conctete solution.

I'll take you're calmimg advice.

xox

Freckle1000 profile image
Freckle1000 in reply to KayHimm

How are you going Any progress with the neuro stuff ? X

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