Wrist pain

I’m an avid reader but can’t hold hold a book or kindle for more than 20 minutes due to RA pain and stiffness but I’ve found this which is great ! If just sits on my knee and holds the book or kindle. It’s also a good shaped cushion behind my back and useful for propping up a leg to rest. Best but is they come in all colours and cool animal patterns. It’s called an ibeani 😀Hope it helps.

[weathervane]

I have the same problem with books . I also have kindle app on my phone which is handy for hospital appointments etc , i also use it if I wake up at night and can’t sleep as it’s lighter than kindle. Love the cushion , what is it filled with ??

[Hidden in reply to weathervane]

It feels like beans but suspect it’s more likely to be polyballs of some sort. Should be easy to make if you’re creative and wrists allow. I bought mine direct from the company but I know they sell them in places or outlets like JML as I’ve seen them advertise on TV. 😀

[weathervane in reply to Hidden]

Will check it out 😀

[Barnclown]

🤩 OMG: THANKS ❣️👏👏👏👏

👍EXACTLY what I need...just found their website & ordered one in denim blue

🥳❤️🍀 Coco

[Klutzy]

Thanks for posting that! I could use if. My wrists are causing me so much trouble lately, so that would help.

Curious if you have both RA and Lupus, how do you know RA is the cause of your wrist problems? Or does Lupus not effect the wrists?

[Jmiller623 in reply to Klutzy]

I think Stills just has Stills disease which is juvenile idiopathic arthritis. It’s kind of like Rhupus but worse IMO. Stills is so rare so I think she joined lupus since her symptoms are likely very similar to ours.

Didn’t mean to answer for her but I had the same exact question until I read her profile.

[Klutzy in reply to Jmiller623]

Thanks for the response and information. Stills sounds awful them. I ask because I’m awaiting my follow-up Rheumy appointment to see if I have autoimmune. When I saw Rheumy, she took many blood tests and xrays. Yet she wouldn’t comment if she thought it was more RA, Lupus or something else. Since then, my wrists are causing me more grief and the swelling has increased in both.

[Hidden in reply to Klutzy]

Yes Jmiller is right I don’t have Lupus as far as I know. Just Stills but it’s quite rare so finding people who understand is great hence I joined you all. I hope you don’t mind an interloper 😆I also suffer from LS and IC both attributable to AI diseases. There is another member on here with stills, the only other one I’ve encountered, 😃

[Klutzy in reply to Hidden]

Thanks. I wasn’t trying to be nosy just trying to figure out my issues since the older I get, the less impatient I am. It’s tough to wait another week to see Rheumy again.

Glad you found this site and especially the other person who can relate to you. It sounds like a tough disease, not that any of them don’t stink enough. I feel my issues are more RA but I do have some Lupus things. Until I know, I toggle between the forums. So technically I don’t belong on any forum yet.

[Hidden in reply to Klutzy]

Pain management and life style restrictions are the hardest but I have two sons, two grandchildren and the strength to tell hubby off! 😜

[Hidden in reply to Klutzy]

Happy to answer any questions relating to RA if I can. Stills is quite rare less than 2 per 100,000 and adult onset rarer so I think my experience may be quite unique and I’d hate to share misleading facts.Do let me know how you get on though. 😊

[Klutzy in reply to Hidden]

Wow that is rare! You should buy a lottery ticket; maybe your luck will change for better. Thx for answering my question.

[Hidden in reply to Jmiller623]

Perfect reply thank you😄

[Hidden in reply to Jmiller623]

It’s quite scary knowing a physician thinks it’s worse 😫

[Jmiller623 in reply to Hidden]

I’m sorry. Don’t mean to scare. I shouldn’t say that. I think when controlled, we never see cases of Stills too often. Hence why I said I always saw them when they were inpatient and really sick so my bias is skewed. I should say when controlled, it is very similar to lupus. When uncontrolled, I feel it has a tendency to crush people a lot quicker than lupus. Really sick Stills patients look like sepsis without a bacterial infection…. similar to what we saw in COVID. Very hard to treat.

Don’t fret. If controlled, you should be fine. I wouldn’t lose sleep about it. Just maybe have a lower threshold for infections and such. 🦋💜🦋

[Hidden in reply to Jmiller623]

Thanks for your reply, I feel quite lucky actually as at diagnosis my parents were told I’d be wheelchair bound and could die even. Now 59 I boast that until 10 years ago I even used to go to the gym ( and then the bar) 😀 I recognise your description of how I felt when it all started. The last 10 years I’ve noticed a big decline but so be it. After what I’ve read on this site I still feel lucky. Thank you Jmiller for all you information 😀😀😀

[Jmiller623]

Hi again Stills! I just read your profile and now I understand why you have joined us. I thought you may have had lupus too. I was like geez….. what awful luck you have. Glad you’re with us!

There are tons of things that you can buy to help with this. I buy pillows with a pocket in it so I can put my book in it and it keeps the pages separated. I have the same problem. My wrists hurt and my hands get numb when holding a book for too long. And new books just don’t cooperate even with the traditional reading pillows. They always close on me.

Happy weekend!!!

Reading pocket pillow

[Hidden in reply to Jmiller623]

Love that cushion!

[happytulip]

I have something similar from Amazon. It's for my iPad but I use it for my books and all sorts of things

[Krazykat26]

I have been toying with the idea of getting one of the beanbag type.I read a lot in bed..am wondering if it would be ok resting in my bod rather than a hard surface. Have u tried it in bed? Does it slip off if u move? 🌈😽😽Xx

[Hidden in reply to Krazykat26]

It’s perfect for that due to its pliability and washable if chocolate gets on it 😜

[Krazykat26 in reply to Hidden]

😹 thanks for that Stills 🤗👍🌈😽😽xx

[Mollymaid]

Hi .. thank you for sharing this info I’ve been struggling for ages. I’ve ordered two, treat hubby, just for info they are two for £35 with free shipping at the moment.Have a lovely day 🤗xx