Our Wendy39 participates in this broadcast on COV... - LUPUS UK

LUPUS UK

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Our Wendy39 participates in this broadcast on COVID, long term patients etc in Wales

Barnclown profile image
Barnclown

I think it’s a BRILLIANT piece...starring several experienced, deeply thoughtful, very articulate fellow patients + medics involved in care...I love the constructive criticism & frank acknowledgement & positive attitude towards this dire situation...my feeling is: this is relevant to us all, wherever we’re living

🤩Wendy: CONGRATS, & THANKS 👏👏👏👏

💞💞💞💞🤝✊✌️🍀 Coco

One or the other of these 2 links should work for you:

itv.com/walesprogrammes/art...

itv.com/walesprogrammes/art...

16 Replies

Dear Barncloud

This looks like an interested listen .

Unfortunately when I tap the link it says bad request , has it does with all the links posted on this site . So not able to view or listen to any .

I’m still not able to add photos. ????

I’ve tried to sort , but problem remains .,

I know I might be able to type in the link . This I find virtually impossible has many a link is miles long .

So sadly I tend not to look on this helpful lupus app and reply has much has I did .

Im starting biological treatment soon , so not feeling too good in a million ways , having failed several treatments and ended up with further complications .

Hope your as well has can be

🦋❤️

Kevin53 profile image
Kevin53 in reply to Willow1414

itv.com/walesprogrammes/art...

Barnclown profile image
Barnclown in reply to Kevin53

Thanks kevin: have added your link to my 👍post

Spotty-ewe profile image
Spotty-ewe in reply to Kevin53

Thanks for the link Kevin. An excellent programme.👍🏻👍🏻

Willow1414 profile image
Willow1414 in reply to Kevin53

Hi Kevin

The link you sent remains the same , unable to open

Thank you anyway

Yearly ultra scan tomorrow of thyroid and salivary glands , had occupational therapy phone call yesterday , what a lovely helpful lady ….

🦋❤️

Kevin53 profile image
Kevin53 in reply to Willow1414

All the very best for tomorrow.I find that I struggle with the links on my phone but they work on my tablet.

Best wishes

Kevin

Barnclown profile image
Barnclown in reply to Willow1414

Hope Kevin’s link works for you. Thanks for letting us know my link doesn’t always work!

Hope your biologic helps! The individualised ‘trial & error’ nature of our treatments is seldom easy, & you’ve had it extra tough ❤️🍀❤️🍀

Willow1414 profile image
Willow1414 in reply to Barnclown

Hi Barncloud

No Kevin’s link is the same . It says bad request ?

Not to worry .

🦋❤️

Barnclown profile image
Barnclown in reply to Willow1414

Oh dear! 🤷🏼‍♀️ The internet is so weird: both links work for me....am very sorry you’re getting nowhere 💞💞💞💞

Wendy was brilliant. An excellent well balanced programme. Best wishes Kevin

itv.com/walesprogrammes/art...

Hear hear barnclown. Thanks for links and i couldnt agree more. Our wendy is going to be such a FAB Advocate within Lupus UK now battling for Wales. Hope your coping with the heat. Xx

Excellent program, thanks for sharing the link Coco and a big thank you and well done Wendy39 …. lovely to see you Wendy👏🥰

Diane💕🌸xx

What an excellent piece that is. Wendy was so articulate and put over very well what we Lupies suffer. The programme I thought was relevant to all of UK and the NHS and to anybody suffering a long-term illness/condition. Thank you so much for sharing it with us Coco.

Thank you for sharing this Coco and a thank you to everyone for their kindness and support. I was very nervous as I haven't done anything like this before but pleasantly surprised with how it turned out.

More from Tyler who did the interview

walesonline.co.uk/news/one-...