Rheumatology in Wales: I should be grateful for... - LUPUS UK

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Rheumatology in Wales

Kevin53 profile image
7 Replies

I should be grateful for your views on the following:

nras.org.uk/data/files/Publ...

Especially if you live in Wales.

Best wishes

Kevin

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Kevin53 profile image
Kevin53
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7 Replies
thekeys46 profile image
thekeys46

Interesting reading. I will need to read it again to take it all in.

I had been discharged by my rheumatologist as I was no longer complaining of joint pain but concerned as I am due to come off Humira ( given for scleritis by a hospital outside Wales). My quality of life for the last 2 years has been superb as it’s obviously helped with joint issues too.

Dalilatm profile image
Dalilatm

Hi Kevin53 ! Thank you for sharing this doc. I didn't know about it... I've been trying to find all possible info about Lupus in Wales, where I live. I'll read it just now. I saw it's from Nov 2016. Let's see.

creaky profile image
creaky

Thanks for sharing, will have to have another go at reading it all, but from scanning it, very little direct reference to lupus which is disappointing.

HedgeEnd profile image
HedgeEnd

I know this is an old post, but I don't think their figures are very accurate or at least don't reflect real waiting times. I had my first rheumy appointment in March 16, after a 10 month wait and was meant to have a follow up appointment with the consultant in 6 months . . . I finally had an appointment with a specialist nurse in March of this year - 18 months late.

Kevin53 profile image
Kevin53 in reply to HedgeEnd

Thanks. Is it possible to say which health Board? Best wishes Kevin

HedgeEnd profile image
HedgeEnd

Yes. It is Hywel Dda Health Board.

Kevin53 profile image
Kevin53

Thanks. I have raised the issues of Rheumatology in Hywel Dda with the Welsh Health Secretary and await his response.

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