Had my Oxford vacccine today and exactly 11 hours later I woke with severe stomach cramps and then a developing fever, I could not stop shivering. I called 111 who told me I needed to wait for a call back as I needed to go to a&e to be checked over. I’m still waiting for the call 5 hours later. Anyway still feeling rough and have an awful headache but I suppose it means at least I had an immune response. I was very nervous having the jab with so much unknown about how it effects lupus patients but o really felt like there was no choice. Anyway good luck to those of you having the vaccine soon.
Ps I haven’t put this out there to scare anyone just to be informed, I really think we all need to be vaccinated. I have read if you have a strong response it means you would have been seriously ill of you contracted covid. Stay safe all!
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I have been a bit worried about side effects, mainly from a logistical point of view, and booked an appointment with the GP before setting a date for my vaccine to discuss. A few things she said that I thought were useful:- side effects should be short lived, around 48h.
- you are more likely to have them if you have already been exposed to COVID, knowingly or unknowingly, or on second jab. It is indeed a sign that your body is recognising the threat 👍.
- Astra is safe to have even for those of us who can’t have live vaccines.
I really hope you feel better soon. My mum had a similar reaction for 24 hrs and then was left washed out for a week. But she is pleased to be protected from Covid.
Thanks everyone, I’ve emailed the london lupus clinic as I think it’s important they document people’s reactions to get an overview. I’m shocked at this reaction but believe I had covid in December 19 so maybe there is something in that!
HiI had my Astra Zeneca vaccine on the 5 th and experienced similar. I was told to expect a few days of side effects and was glad I had expected it. Firstly a funny taste in mouth then headache , aches,chills and fatigue,back ache and nausea. You name it I had it over 48 to 72 hours then it gradually released me. Felt worse than normal for a few days more and now back to my normal struggles. I couldn’t wait to get the vaccine, slight delay of days as first booked for Pfizer which I couldn’t have but so great full for getting it. Planning to have family,pets ,shopping etc organised for when I get my second as know it’ will probably be the same knocked about few days but having lost 3 family members to Covid I will happily put up with a short term flare to get protected.
Hope you are feeling better, thank you for sharing this information. I have heard of a few folk developing rashes also. I am awaiting my vaccine & appreciate this knowledge, thank you.
What I have picked-up from renal consultant is that they can’t predict how our bodies will react to the vaccine ie whether we will make the antibodies. But a reaction is definitely a sign that your body is picking up a threat and should therefore be seen as an encouraging sign.
Thanks all, feeling slightly better this morning but still like I’ve been run over with a bud, my whole body is sore. Strange it feels similar to a flare but also reminiscent of when it’s likely I had covid (before there was a test for it) as someone mentioned if you’ve had covid your reaction to the vaccine is supposedly quite severe. The gp said these side effects are super common and it’s causing people to feel quite rough for a few days. If I had expected it I wouldn’t have been so concerned so for any of you who do feel like it, it’s normal. Interesting to hear everyone’s stories as we continue down this road and find out how our lupus bodies will respond. Stay safe everyone
Sorry to hear you have had such a bad time following your vaccine. I had mine a week ago, and just to reassure others ,I had mild flu for 24 hours. Hope you feel well soon.
I had a massive headache and surprisingly really bad neck pain. It seemed all my joints and muscles were straining under the pain. I felt very sick although I wasn't and could not eat anything. I was a bit concerned about taking medication on an empty tummy but gave in as I didn't want to feel worse! I realised I was getting very dehydrated because my kidneys begain to ache and my urine was dark but oddly I couldn't face the taste of plain cold water or other drinks. I decided to have the hydrating sachets with tepid water which surprisingly I could manage and even like!
(The supermarket ones or own brand are much cheaper that the Dia........ one)
I was extremely poorly for three days before getting up to sit in a chair for a couple of hours. After that I have started to improve and now I just feel pretty washed out, but eating and drinking normally.
My husband was done the same time as me as they came to my house and I was really miffed he never even had a lump on his arm! However that did mean he was able to look after me, imagine if we were both very poorly.
I understand that it is a possibility but neither GP or Consultants have mentioned this. On the contrary they all want me to have it (and they are still working to stabilise me). I would also consider that if you over-react to a vaccine that isn’t the real thing (none of the vaccines use live COVID), getting COVID would most likely be really bad news.
I was the same but I’ve come round to thinking it’s just like me picking any virus up and how my body reacts. I do know what you mean because I caught glandular fever when I was young and that’s how my lupus began and I’m scared this will do the same but if we get coronavirus, which is highly likely if we don’t have the jab, we could be in a much worse situation. I felt better yesterday, still not 100% by any means but recovering. I read an article yesterday saying the French and Italians are turning the Oxford jab away because of side efffects, in one day 92% of their fire service in one area were off sick because of the side effects of this jab. If you can go for the Pfizer, but in essence they are all doing the same thing , maybe the rna version is kinder to the immune system. I felt very let-down by the healthcare system when they couldn’t be more clear on how the vaccine would effect lupus sufferers, I know it’s early days but info should really be gathered which is why I have put my experience out there and have told the London lupus clinic. When I’m ill I’m floored because my immune system goes into total overdrive it’s like i go from being well to literally feeling at deaths door and I wish I had been more prepared but I also think we have no option but to have the jab because if that was a taste of coronavirus I don’t think my system would get through it if I had the real thing!
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AstraZeneca Vaccine 2 (Oxford)
Advice for Lupus patients under 30 and the Oxford/AstraZeneca vaccine 
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