P.I.P Hope!: After 14 long months, and a... - LUPUS UK

LUPUS UK

32,241 members28,596 posts

P.I.P Hope!

lupie46 profile image
45 Replies

After 14 long months, and a rescheduled tribunal, I have had the DWP decision to take away my benefits when I switched from DLA to PIP, overturned.

Not only was the benefit reinstated, but the court awarded me extra help.

I know it's hard, but please fight for what you're entitled to. We didn't ask to have lupus. It's not our fault.

I'm chuffed!!

Written by
lupie46 profile image
lupie46
To view profiles and participate in discussions please or .
45 Replies
Spanielmadlady profile image
Spanielmadlady

Brilliant news hopefully now you can relax as I know the stress it all causes.i've had my award period extended due to covid so the stress has been delayed until 2023 . Xx

Meg52 profile image
Meg52

I’m so pleased for you, it’s such a stressful time for us lupies when those forms arrive. Well done for sticking with it. xxx

lupie46 profile image
lupie46 in reply toMeg52

Thanks.

PMRpro profile image
PMRpro

I bet you are chuffed! Well done for fighting the fight. Had it been stopped? Is the award backdated?

lupie46 profile image
lupie46 in reply toPMRpro

They stopped it straight away. Yes it was backdated. The car tax wasn't though.

stiff19 profile image
stiff19

Great news so pleased for you, but really sad that people are put through this. Result is great but the stress caused is not acceptable , some people can’t fight the fight, or indeed should have to, it’s another system that fails people. Well done though 👍🙌🏻 Glad you’re getting the help 👍🤗

lupie46 profile image
lupie46

I think I'm quite resilient, but even I found the stress a bit much.

svfarmer profile image
svfarmer

That’s amazing - so happy for you - I’ve just done all my PIP paperwork last week x

lupie46 profile image
lupie46 in reply tosvfarmer

Good luck with yours

svfarmer profile image
svfarmer in reply tolupie46

Thankyou x

CecilyParsley profile image
CecilyParsley in reply tosvfarmer

Good luck lovely. The system is so flawed and unjust. I hope and pray that you get it without issue xxx

Georgiab123 profile image
Georgiab123

Relax and enjoy life’s hard enough x

Willow1414 profile image
Willow1414

Hi Lupie46

So glad you had your benefits reinstated .

I hope one day , that there will be compensation for what is clearly wrong .

🦋❤️

Smudge4465 profile image
Smudge4465

Go girl go! So pleased for you!

Spotty-ewe profile image
Spotty-ewe

Am I missing something here? 🤷🏼‍♀️ I was diagnosed with SLE almost 9 years ago and have Raynauds, angina, atrophying kidney and suffer with anxiety and depression, all of which have prevented me from working for the last 16 years. I was awarded a reduced pension from teaching due to ill health but I have never claimed anything else as I assumed I wouldn’t qualify and look forward to receiving my state pension at long last when I turn 66 in July. But if I am entitled to a benefit I’d appreciate knowing about it. Any ideas?

So pleased to hear you’ve had your benefit reinstated Lupie 46.👍🏻

Dustb profile image
Dustb in reply toSpotty-ewe

You may be entitled to P.I.P

Spotty-ewe profile image
Spotty-ewe in reply toDustb

Thanks Dustb. I’ll Google it and see how to go about it with the help of my husband as I couldn’t handle it on my own. Thank you.

CecilyParsley profile image
CecilyParsley in reply toSpotty-ewe

You are definitely entitled to PIP it is not means tested. You may also be entitled to Pension Credit Guarantee , depending on how much pension you do get as it is based on income. That would entitle you to free dental treatment, eye tests etc if you do not already get it? The Turn2us site have a benefits calculator to inform what benefits you are entitled to. We only found out about Pension Credit Guarantee when we used it. Good luck xxx

Spotty-ewe profile image
Spotty-ewe in reply toCecilyParsley

Thanks so much Cecily. I’ll try that site, well hubby will, and see what we can find out. Thanks again.

CecilyParsley profile image
CecilyParsley in reply toSpotty-ewe

I hope it helps you lovely. When applying for any benefits the Benefits and Work site is invaluable too. It does cost £19 but worth every penny. It walks you through the process, what you need to put in and evidence you need xxx

Spotty-ewe profile image
Spotty-ewe in reply toCecilyParsley

Thanks Cecily. I’ll look at that. Hubby is going to phone tomorrow for the relevant forms, so the Benefits and Work site sounds like just what we need when the forms arrive. Thanks for all your help. Love and hugs as always. 💕🤗x

CecilyParsley profile image
CecilyParsley in reply toSpotty-ewe

You are so welcome lovely. I had to fight hard to get DLA despite all the medical reports I had at the time. Then they sent an assessor to my home who decided I was faking illness and they not only took it off my but demanded the money they had paid me for two years back, even threatening bailiffs. I went to Tribunal and got it reinstated. When it changed to PIP they put me through two individual face to face assessments one in a centre and one at home. Neither assessor had any idea of my conditions the one at home was a mental health nurse. They lost the first assessment and I had to submit a complaint. All my deeply personal info in the system somewhere?? I had an apology and compensation of £75. It was never about the compensation but the fact that they had treated me with such contempt. It is daunting and demoralising but it helps significantly with things we need to make life more comfortable and bearable. You will also get your car taxed if you get the higher rate of mobility and of course a Blue Badge which is priceless. Xxx

Spotty-ewe profile image
Spotty-ewe in reply toCecilyParsley

That was an appalling experience for you Cecily and bound to exacerbate your condition with the stress involved! So glad you had it reinstated in the end but you had to go to hell and back to get it. I hope I don’t get that sort of trouble. 🤞 Thanks again for your help.🤗😘 xx

CecilyParsley profile image
CecilyParsley in reply toSpotty-ewe

It was worth it honestly and it was due to be reassessed this year and I have had a letter extending it for ten years!!Gobsmacked but so grateful xxx

Spotty-ewe profile image
Spotty-ewe in reply toCecilyParsley

That is good news Cecily.👍🏻👍🏻 Well worth it in the long run. 😁 I’m so pleased for you. 🤗😘x

lupie46 profile image
lupie46 in reply toSpotty-ewe

Please do try for PIP. It was a pain, but I persevered and went through mandatory reconsideration and a court tribunal, and won. Don't give in. As long as you're not in receipt of state pension, you should be eligible. You will need to get your application in before you're 66. Even if you are turned down and appeal, they will back date it . You cannot apply for PIP AFTER you are 66, but if you are getting it before that, it will continue.

Spotty-ewe profile image
Spotty-ewe in reply tolupie46

Thanks Lupie. Hubby read that about not being able to apply after pension age, so we’ll get on with it. Thanks for your encouragement. Your perseverance paid off thankfully, so we’ll try not to give up at the first hurdle. 😝 Take care. 🤗

tjo52 profile image
tjo52 in reply toSpotty-ewe

Hi Spotty-ewe..as I work full time i assumed I was not entitled to any benefit.I applied..they loss my claim later found it..took five months all on all and recieve one component which is around £50.per week.. it was all very stressful..make sure you have your hospital letters..GP letter and describe how you feel on your worse day..I neally didnt bother..more so I was never informed of this benefit..found out about it by chance conversation..If you do try..good luck..have a lovely day

🌻🦋

Spotty-ewe profile image
Spotty-ewe in reply totjo52

Thank you so much for the advice tjo. It is terrible how we are left to discover these benefits by chance. I never expected there’d be anything that wasn’t means tested so didn’t ask or investigate. Glad it paid off for you and thanks for your kind wishes. 🤗😘💐

tjo52 profile image
tjo52 in reply toSpotty-ewe

Your very welcome..do you still have any occupational health letters from when you were working?..my oc health have been so supportive and I always use this letter if I need to summarise ..take care 🌻🦋

Spotty-ewe profile image
Spotty-ewe in reply totjo52

Yes, I have all the paperwork and copies of medical reports etc used for my application for early retirement from teaching due to ill-health. I was thinking these might be useful. My Union helped me then but I only recently dropped my membership so I wouldn’t get their help now. I was then a carer for my Mum for 2 years until she passed away in 2006. Thanks again tjo 🤗😘💐

tjo52 profile image
tjo52 in reply toSpotty-ewe

That's good..they really help..maybe citizens advice to if you do struggle..I managed to do it but it took me a long time.Sorry to hear about your Mum..caring and loosing her must be so difficult to say the least..❤

Take care and good luck 🌻🌻🦋

Spotty-ewe profile image
Spotty-ewe in reply totjo52

It was heart-breaking tjo especially as I was with her when she passed. It did nothing for my mental health and I still miss her. Thanks for your understanding. Good idea about CAB. If I struggle I’ll contact them. Take care. 🤗😘x

tjo52 profile image
tjo52 in reply toSpotty-ewe

Spottyewe..Your mum will always be with you..close to your heart ❤..loss has a massive impact on our mental health..the pain of grief is so hard..you take care

🌻🌻🦋

Spotty-ewe profile image
Spotty-ewe in reply totjo52

Thank you Tjo, you are so kind. 🤗😘💕xx

tjo52 profile image
tjo52 in reply toSpotty-ewe

❤❤🌻🦋

Georgiab123 profile image
Georgiab123 in reply toSpotty-ewe

Can’t put a new claim in for PIP if your on state pension , welfare rights put me on course one year before I retired there is another benefit you can claim x

Spotty-ewe profile image
Spotty-ewe in reply toGeorgiab123

I’m not on state pension yet Georgia, not until July. So we are setting the ball rolling today. Thanks. Xx

Georgiab123 profile image
Georgiab123 in reply toSpotty-ewe

Good if papers are in that’s when it starts, it was the same as mine , good luck I had no bother at appeal court x

Spotty-ewe profile image
Spotty-ewe in reply toGeorgiab123

That’s good to know. Thanks again Georgia. Xx

Georgiab123 profile image
Georgiab123 in reply toSpotty-ewe

And you get paid from that date x

Dustb profile image
Dustb

I am so glad you got the DWP decision overturned. Like you, I had to fight them to have mine reinstated. I agree, we are entitled to certain benefits, it can be stressful sorting these matters out, but pleased find the strength to fight!

CecilyParsley profile image
CecilyParsley

Wonderful news. I am delighted for you. I know how hard it is to fight and how difficult the DWP make it for you. I had to go to Tribunal five years ago when an assessor decided that I was healthy based on looking at me, disregarding all the medical evidence. The DWP quickly rang and wrote insisting that I repay all the benefits I had claimed “ fraudulently ”. So I had to have two Tribunals. It made me so ill with the stress. The first Tribunal overturned the DWP decision and this meant I did not have to go through the second,. The relief is immense. Hopefully they have awarded it to you for a lengthy period? Well done for beating the bullies xx

Krazykat26 profile image
Krazykat26

Congratulations lupie 46 n well done 🎉🙌🎉🙌Now u can relax n treat yourself!! 🌈😽😽Xx

Healthyheart1 profile image
Healthyheart1

I'm just on the 1st step on the ladder. Wish me luck. Best wishes to you lupie46 x

Not what you're looking for?

You may also like...

P.i.p Stress!!!!

Hi I have been S.l.e.lupus and anti phosphlyed sydrome raynauds.osteo athriris kidney stones...
nmcleod profile image

P.I.P UPDATE

Hi everyone. I wrote a post about how Capita had rung me before my pip assessment asking lots of...
lillyanne profile image

P.I.P

Please can anyone tell me, when you fill in the pip questionaire, how long after they receive it,...
Lucymay profile image

Hope

Hello fellow lupies. I just wanted to share with you a really interesting article in the...
Maya23 profile image

There is hope!

Just wanted to let you all know that there is hope. In 2010 I was diagnosed with Lupus after many...
Maya23 profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.