Hives and lupus? : Hey all Hope you’re all keeping... - LUPUS UK

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Hives and lupus?

Cazza_dow profile image
9 Replies

Hey all

Hope you’re all keeping safe and calm in these times.

I was just wondering if anyone else suffered with hives? Especially as the weather gets hotter?

I got this last year around the same time when it began to get hotter in the UK, and it’s just reappeared, in the same place too! So strange

I’ve not been on any meds/given any cream for this, does anyone know what can help?

Going to call the doc on Monday!

Thanks so much x

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Cazza_dow profile image
Cazza_dow
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9 Replies
unity3 profile image
unity3

I had them last year from May through to October . I found taking an antihistamine hay fever tablet daily helped to stop them. I did try stopping the antihistamine's a couple of times but within 24 hours the hives were back. It was only in October when it got a bit cooler that I was able to stop taking them. So far this year(fingers crossed) it has been ok.

I found the hay fever ones with Loratadine worked better than the ones containing cetirizine hydrochloride if that helps.

Redfox25 profile image
Redfox25

I had hives in October last year quite badly all over my body. I couldn't sleep at all and was completely miserable. I thought it was an anaphylactic reaction to a new medication as my lips were very swollen too. I was at the beginning of the process of being diagnosed with lupus and thought I had UCTD but a few months later was diagnosed with SLE.

After consulting the GP and pharmacist several times and taking antihistamines with no effect, I went to A&E as I was concerned about the swelling restricting my airways. I was given steroids and have only just managed to get off them. They worked to get on top of the hives but have recently seen a dermatologist who said he'd prefer they weren't used again. If they reappear he said to take antihistamines. Not the non-drowsy ones. I'm a bit worried as last time the antihistamines didn't help at all. I hope they work for you.

I've seen a bit about hives and SLE on the Johns Hopkins website which might be of interest: hopkinslupus.org/lupus-info...

Kevin53 profile image
Kevin53

Mine was down to tree pollen. I take anti histamines from mid February to end of May ....a huge improvement. Best wishes Kevin

CROOD profile image
CROOD

Hi,

Fexofenadine 180mg 1 or 2 a day. Good luck :)

Chris

Kevin53 profile image
Kevin53 in reply toCROOD

Fexofenadine has worked well. Best wishes Kevin

svfarmer profile image
svfarmer

Hi yes I get hives a lot - especially in the warmer weather - I take Pirition 4 times a day - these are the only ones that eases it -I’ve tried the 1 a day but they just don’t work for me - also I use Anthisan bite and sting cream which also really helps - best wishes x

svfarmer profile image
svfarmer

Sorry forgot to say on occasions I use steroid cream if it’s really bad but this really dries the skin out x

bluebell99 profile image
bluebell99

I had it so long and so bad I was referred to a dermatologist. He prescribed fexofenadine and as long as I take it from February to October I am fine.

It has to be on prescription though as you cannot get it over the counter.

Eurax cream is sometimes a help when the allergic reaction gets out of hand.

Triscichick profile image
Triscichick

The only time I had hives was a month after I started taking Plaquenil (hydroxychloroquine). The hives were severe and everywhere. They went completely away a month after I stopped taking it.

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