I had an email/text from the rheumatoid department asking not to attend any to any hospital app and to keep myself in isolation. Because I have Lupus etc, does that mean no-one to help me? I do have a full time carer as I’m housebound and cannot use one hand so I can’t make dinner etc. I do a lot of physio as I cannot walk. So I’m confused. Can someone give me some advice.
Thank you, keep safe.
Teanna
Hi Teanna - have you not had a letter from the NHS about being at risk? Have you seen the article from fellow lupee on here PMRPro healthunlocked.com/pmrgcauk... and Paul from Lupus UK on here lupusuk.org.uk/coronavirus-... They will help but sounds like you need more guidance/support from your GP surgery and clinicians, especially if you are on immunosuppresants and active disease, neutropenia etc... Has your carer been in touch? Are they professional or friend/family etc? Do they live with you - i e not going to pose a risk as not going out? Hope this helps and your are OK. Do let us know how you are getting on.Dx
Hi, no I did not receive no letter etc. All that I get is my consultants & Professor Cohen are calling myself. I have a full time carer, and she has a boy that has Down’s syndrome and is high risk, so she ie extra careful. And she lives in the next house, so if I need something she would come in. So I’m pretty lucky. It’s just worrying.
Thank you
Keep safe
Teanna
Yes, I got a telephone call from the Dermatologist/Lupus regarding my upcoming appointment mid April.
That will be tele-video consultation.
Take care & stay safe x
Hi Windy9- think this was for Teanna.. and totally agree with all your advice :). x
Hi, I’m sorry i meant it for yourself. It’s just strange when u have the vascular surgeon calling you when they can’t see where my trouble is.
Thank you again, keep safe. It gets very lonely, I shouldn’t moan there are people worse of than myself.
Take care, keep safe
Teanna
Hi Deanna. Your essential carers can continue as long as they don't have symptoms of coronavirus and they wash their hands on arrival and often. Take care.x
She is great. She has been my full time carer for 3yrs, 7 days a week. So she knows me very well. She always cleans, cook and the housework.
Hope yr well, keep safe
Teanna
I Just really need a safe place to vent
Just a question 
Crying, pain & optimism
Lupus and Menstrual Cycle
Further harrumphing!
