HI. When I first started to experience lupus in my early twenties (now 52) I had started on a teaching career in FE. I had done a PGCE and taught on a reduced hours contract and really enjoyed the job. I had to change tack though when I needed time off sick (despite the reduced hours) because I didn't feel comfortable about the impact of my absences on my students or colleagues. Nobody made me feel badly but I knew it wasn't right. I was able to change to freelance research and then shifted to a permanent Research job which allows me to work from home a lot. In 2011 my symptoms got worse and I became more and more aware of how if I had to do regular hours and was appraised on the work process rather than simply results I would not hold down my job. Worse still I couldn't hold down any job. Recently I tried to talk to my consultant about work. He heard the word 'work' and before I said anything more said airily...'yes you can work'. He seemed to think I was asking permission to work ...or for permission not to work when really I wanted advice about how best to deal with the problems that might stop me working. I found his response very unhelpful and wondered how much it was produced by the culture of trying to force people off benefits and into work. As I explained my very unusual job....think of it as similar to being a writer if you will....allows me to work whenever I can and so long as I meet output targets that is fine (and not special to me) but this is very rare and I can't imagine being able to hold down a job where I was having to take sick leave even ten percent of the time. This made me think that the airy 'you can work' response is technically correct some of the time but takes no account of the fact that to hold down a 'normal' job you need to be regularly fit for regular hours of work which is a very different thing. I think more needs to be done to change the narrow understanding that now seems to dominate the thinking of professionals associated with assessments of fitness to work. I am sure a lot of people are suffering as a result of the current system and lack of understanding. I wondered what you had all experienced in this regard?