Not posted in ages. Currently going through a ju... - LUPUS UK

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Not posted in ages. Currently going through a juggling 🤹🏼‍♀️ act

Lisalou19 profile image
25 Replies

Thought I would check in with my wonderful support group 😘

I have so much going on right now and trying to find that happy medium with medication, easier said than done.

I certainly feel more stable mentally and physically on 7.5 mg daily steroids. Still struggling with stairs but I guess I need to take the view that steroids are not going to fix everything!!!!!

Currently getting my Christmas on and preparing to move in the new year. (Again) 🙄. My mum says I never do things in halves . I wish this wasn’t the case but I’m guessing god has his plans 🤷‍♀️

I do hope you are all feeling well and managing to get your Christmas on too. I have a very excited 6 year old and this is motivating me to bring the Christmas spirit to our house.

Much love to you all.

Xxx

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Lisalou19 profile image
Lisalou19
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25 Replies
Lupiknits profile image
Lupiknits

Thank you! It’s always heartening to hear from you x

Lisalou19 profile image
Lisalou19 in reply toLupiknits

How are you ? Xx

Lupiknits profile image
Lupiknits in reply toLisalou19

Tootling along! 💐🧶💕🕊

Lisalou19 profile image
Lisalou19 in reply toLupiknits

Awe lovely little saying “tootling along” xx

honeybug profile image
honeybug

Hi Lisalou 😊🌿🌸🦋

Lovely tree. Glad you’re doing some better. Hope that continues.

You take care and have a Merry CHRISTmas too.

Abundant blessings dear.

EJ 😊🌿🌸🦋🙏🤗💗😘😇🕊☃️❄️🎅🤶🎄🦌🎁✝️

Lisalou19 profile image
Lisalou19 in reply tohoneybug

Thank you . Such beautiful, colourful emojis 🥰 xx

honeybug profile image
honeybug in reply toLisalou19

You’re welcome sweetie. So glad you enjoyed my emoji array. xxx

LL, Merry CHRISTmas (Honeybug-love it!) from me as well. Your tree looks great and children are a great motivator! We put our problems aside for them. Maybe I need to have another baby 👶🏻. J/K- I went through menopause 27 years ago at 34, but I guess I could adopt? (Where would I find the energy? 🤷🏻‍♀️) But I wanted to compliment you on your tree. I’m usually all decorated by now but am finding it hard to have enough energy to tackle it. I know I’ll get it done, but haven’t yet. But thank you for the picture of your lovely tree. 🙏

Lisalou19 profile image
Lisalou19 in reply to

Awe , children are certainly a reason to keep motivated for sure. I often ponder if I would cope so well without the children around me. 34 is very young to go through the menopause. I try to look forward and hope one day I have grandchildren.

Xxx

in reply toLisalou19

Oh Lisalou, for sure you will have grandchildren! We just had our 11th grand baby 12 days ago. But don’t rush it, you are in your prime. I know it’s a hard thing to do with all that’s going on, but please enjoy your life.

PS, why are you up so late/early? It’s 9:30pm (ish) where I am, but how about you?

Lisalou19 profile image
Lisalou19 in reply to

It is 5.38am

I have terrible insomnia. I can fall asleep but can’t stay asleep 😕. It wares me out on top of this illness. I’ve kind of accepted it now.

Congratulations on your new grandchild. What a beautiful Christmas present.

11 , wow that’s amazing. I bet Christmas isn’t very cheap for you .

Xx

in reply toLisalou19

Ha, ha, no, Christmas is definitely not cheap, but they are worth it. ☺️LL, I hope you get back to sleep ok.

I had problems for years. Read about resetting your circadian sleep cycle. Hopefully if you work on it, you’ll be able to reset your’s. I was able to reset mine. Still working on it some. I went from zero to four hours sleep, and am up to 7 to 7 1/2 average. I’m trying to get it up to 8 or 9 hours.

My best to you🙏

Lisalou19 profile image
Lisalou19 in reply to

Thank you for sharing this. I’m up for trying anything. When people ask why I can’t sleep I always say I feel like something changed, in my brain . I don’t stress about it anymore, I either sleep or I don’t . I do feel like something needs a reset button.

Xx

in reply toLisalou19

Definitely needs a reset. I’ve read that the average adult needs 7-8 hours of sleep per night, but we with AI need 8-10 (or maybe it was 9-10? Idk🤦🏻‍♀️) But definitely, you need to break the cycle you are in.

Good luck.

KayHimm profile image
KayHimm

Your tree is beautiful even more so when we all know what it took to get it put up and decorated. I marvel at what you accomplish.

It has not been easy. But in the past year, you got a diagnosis, were put on successful treatment, and then had illuminating blood tests.

👩🏻‍🔧😍

Lisalou19 profile image
Lisalou19 in reply toKayHimm

Last Christmas was rotten in terms of health. So this year I putting my strong head on. Feeling blessed.

Xx

Benne09 profile image
Benne09

You got this hun 😘🤗 we all have!!

Lisalou19 profile image
Lisalou19 in reply toBenne09

100%. We can only get stronger 💪🏼X

misty14 profile image
misty14

Beautiful tree Lisa, that must have taken a lot of time and energy to decorate it!. Your amazing with all your coping with and you want to give your kids a lovely Christmas!. I hope you all have a lovely time and hopefully your move in new year wI'll bring you better luck and a healthier year. Xx🌲😍🌲

Lisalou19 profile image
Lisalou19 in reply tomisty14

Thank you misty. I hope next year is going to be good for us all.

Thank you for your continued support xx

misty14 profile image
misty14 in reply toLisalou19

Thanks so much for your support Lisa and I hope next year is much better for us all too. Xx

Krazykat26 profile image
Krazykat26

Hi Lisalou 🤗🤗

Welcome back to the group!! Your tree looks amazing..a true work of art!! N it sounds as if you've already got major plans for the new year!! 🤔

I'm glad to hear that the steroids r helping somewhat with your symptoms n that you've got some quality of life back 🤗🤗

It's good to hear from u 💐💐

Kat 😽😽 xx

Lisalou19 profile image
Lisalou19 in reply toKrazykat26

I’ve got unplanned, plans 🤣🤣🤣

I have a rotten egg neighbour. I only moved here January 2019 🤦‍♀️

The stress has been too much.

So this has added to my juggling along with everything else.

Fresh start, right?

Have you got your Christmas on? Xxx

panda2 profile image
panda2

Oooo.... I love your tree and I especially love your pink wafty star! It's so *you* dear Lisalou!

🐼xx

Lisalou19 profile image
Lisalou19 in reply topanda2

It takes some art to get 1 light to sit in the bow. Xx

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