Lupus and Chocolate: Hi All Lupus Warriors, I have... - LUPUS UK

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Lupus and Chocolate

Blessings101 profile image
26 Replies

Hi All Lupus Warriors,

I have SLE, Discoid Lupus, Fibromyalgia and Raynauds.

I have noticed every time I eat chocolate I am hit with a bad fever, and sometimes chest pain.

Has anyone experienced this?

Is lupus affected by Chocolate or does chocolate bring on a flare.

Stay Blessed.

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Blessings101
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26 Replies
Treetop33 profile image
Treetop33

I seem to react badly to lots of foods, but my symptoms are tiredness and joint pain. Chocolate is one of them, unfortunately :(

Blessings101 profile image
Blessings101 in reply toTreetop33

Thank you Treetop33 for your reply. So I guess one more thing to cut out my diet.

Treetop33 profile image
Treetop33 in reply toBlessings101

Well I don't know. I keep on meaning to go and see a nutritionist to find out my food sensitivities scientifically. The problem is always that symptoms can flare up for seemingly random reasons. I've tended to cut out things but it seems awfully austere.

Blessings101 profile image
Blessings101 in reply toTreetop33

I can relate. I've been wanting to see a homeopath, to determine an eating plan and possible natural alternatives to my lupus meds.

With Lupus it's so difficult as flares/symptoms can hit you out of nowhere....from being fine to horrible within minutes.

Sekka profile image
Sekka in reply toTreetop33

😐

Hi wow I couldn’t believe it but yes I have the same reaction as you I flush and get a super intense heat and my joint and muscles hurt and yes I get chest pain and also get out of breath. You have to wonder what’s in chocolate and I find I have the same effects with any dairy or sugar. I don’t have any of these symptoms when I eat well and leave the dairy and sugar alone.

Blessings101 profile image
Blessings101 in reply to

Hi Jeromicus888,

Thank you so much for your reply. I have the same thing with dairy but didn't put it down to lupus.

It's crazy how one has to learn, but so awesome to be able to share on a forum like this and help each other.

Thank you

in reply toBlessings101

I have fibromyalgia, CFS, Raynauds and am Being investigated for lupus. I suspect I have scleroderma and Sjögrens too. I am beginning to think it’s some kind of a allergic reaction or lupus reaction to the sugar dairy or something else within the chocolate. but omg I couldn’t believe it when I read your post. I sometimes think it’s only me it’s nice to know someone out there is similar who understands but it’s a shame we suffer the way we do. Just out of interest Do you have problems with food and swelling up after eating. Have a great evening. J. 😀

Blessings101 profile image
Blessings101 in reply to

I have reaction to certain foods, including garlic, and shortly after the fever and headache my joints start paining and swelling, starting with either my ankles or knees.

I pray you obtain clarity regarding diagnosis.

Will keep you in prayer for strength.

Forums like this really help so much. Sometimes just chatting with people who can relate is helpful enough.

Stay Blessed

Sekka profile image
Sekka in reply to

Yep!

Treetop33 profile image
Treetop33 in reply toSekka

Does anyone know why we get so many food intolerances? Mine are gluten, dairy, cocoa, most nuts, tomatoes, potatoes, grains...the list is endless.

Goldie49 profile image
Goldie49 in reply toTreetop33

Google Dr Brooke Goldner. There is lots of information about diet there and inflammatory food to avoid.

She has been lupus free for 14 years now through diet.

Treetop33 profile image
Treetop33 in reply toGoldie49

Interesting. I've been on the AIP for two years but really hate all the meat. I've been so scared of changing though and so many of these manuals for nutrition look so dodgy.

thestorm profile image
thestorm

For me, it Puts my stomach in a knot... And the sugar crash affects many symptoms. Easter, candy, Halloween candy, you name it, it hurts. But I do Love chocolate. Sorry I couldn't be of more help. I send you my peace, blessings and just say no to chocolate vibes. thestorm😂😂

Biff240 profile image
Biff240

Hi

I suspect it's not the chocolate is the sugar content sugar is bad for lupus and joints.

What I do is have a very dark chocolate 85% and not much of it it and that doesn't seem to affect me.

Hope this helps.

Treetop33 profile image
Treetop33 in reply toBiff240

I've tried that too but it still makes me itchy in places I don't want to discuss :(.

Spotty-ewe profile image
Spotty-ewe

Hi Blessings,

I eat 4 squares of dark chocolate every day as I read it is good for you, and I have no ill effects at all.😁 I have SLE and Raynauds, an atrophying kidney and suffer with coronary artery spasms, but luckily for me chocolate in moderation is not a problem.

But DRINKING CHOCOLATE - that is entirely a different matter. It makes me very ill very quickly - headache, nausea and extreme fatigue. 😫

I don’t know if anybody else has a bad reaction to drinking chocolate but it is like poison to me. I miss the flavour of it, but not the consequences! 🥴 I guess we are all so different.

Interesting post - thank you. 🥰

EOLHPC profile image
EOLHPC

My SLE was infant onset in the early 1950s. The drs back then told my mother chocolate is bad for lupus patients, so she kept me from having it. but my parents & drus never told me i actually had lupus. They just said i was sickly & mustn’t have chocolate cause i was allergic to it. Every year i begged for a chocolate birthday cake...she never gave me one! Instead i had lovely vanilla cakes (usually what we called Angela Food cake)...but i longed for chocolate

When i grew up & moved across the ocean to live my adult life in the UK, i let myself have chocolate and very soon discovered i could get away with a bit of dark chocolate, but milkier chocolate was truly not good for me (pretty much in the same way the others who’ve replied are describing)

in 2011 the NHS finally figured out i’d been suffering from lupus all these decades...when my mother heard about this, she exclaimed: But dear, you’ve ALWAYS had lupus! I replied: what’s lupus?! well, she explained...and now i’m doing much better thanks to the right meds. but no medic has ever said: stay away from chocolate....and in all the research i’ve done about my condition/s i’ve not found mention of a bit of chocolate being bad for lupus... Go figure!

Glad you posted & got these great replies!

❤️🍀❤️🍀 Coco

Yellow5 profile image
Yellow5

Thank you for your post ... I’d had a niggling feeling that chocolate and sugar were making my symptoms flare but I’d tried to ignore it! Chocolate has been my little treat since diagnosis! I’m going to try and avoid it - not sure if I want good results from avoiding it or not!!

Toldyouifeltill profile image
Toldyouifeltill

Garlic, peppers, onions, too much salad or veg that is still a bit firm, bananas, ..... chocolate, and especially drinking chocolate !! I too can tolerate a bit of dark chocolate but I've got used to not having it now. Lucky, as I've just been diagnosed Type 2 diabetes ! So, very limited with so many things to avoid plus sugar and carbs now. I rely on porridge a lot !! 🤭

Raynauds since teens, SLE Lupus since 2005 (37), Vasculitis 2009, Sjorgens 2018 , and Type 2 diabetes since Sept 2019. Plus chronic shin ulcer for over a year after scratching Vasculitis rash 🤬

cgbe profile image
cgbe in reply toToldyouifeltill

Hi Toldyouifeltill.

It seems like your body is under a lot of inflammation. Type 2 Diabetes is a clear sign of inflammation at a cellular level. Avoiding sugars and foods that turn into sugar in your body, is only treating the symptom but not the disease. It can actually be more damaging if you don't treat the root cause. You should try to avoid inflammatory foods (all processed foods, fats, animal products and dairy, sugars and refined flours but not all carbs). Fats and animal proteins are more inflammatory and damaging that sugar for T2 Diabetes. There are some very good documentaries explaining why: Forks over knives, and What the Health.

nutritionfacts.org/video/do...

If I were you, I would give a Whole Foods Plant-Based Diet a try, especially considering you have vasculitis and T2 Diabetes. I have SLE Lupus and it has completely changed my life. I can finally exercise and feel much better!

Cas70 profile image
Cas70

I react to certain foods now too. I have heard a couple of programmes on the radio about healthy gut eating and how it improves your life. I am going to look into it.

Positiveon profile image
Positiveon in reply toCas70

Chuckling Goat is the best gut cleansing ever!

lupette profile image
lupette

I had to give up sugar almost entirely because I realized that it made me sick. Once I pinpointed sugar as the culprit, I just stopped eating it (including chocolate . .yes I know :( ).

I used Splenda for years as a sweetener for my beverages, but have recently switched to Monk fruit Sugar. You cannot cook with it . . but it works pretty well for anything uncooked.

TIP: If you absolutely must eat something evil and sweet and a bit chocolatey try this:

Mix some peanut butter with plain greek yogurt and some Splenda or Monk fruit sugar, then shave some dark chocolate on top .. not too much! Top with whipping cream and you will be satisfied I promise!

lupette profile image
lupette

Oh but I do confess that once in a long while. . . I cheat and eat a little bit of chocolate.

TSmith88 profile image
TSmith88

unfortunately yes but my discoid lupus flares immediately with chocolate, sweets and alcohol, but when I eat pastries or white bread my inflammation is in my intestines.

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