Morning all. I hope you're having a happy Saturday!
I have posted before, but I try not to bother others as I feel that I have so much wrong with me at the moment that it's quite overwhelming. Today, however, I have decided to reach out as I've had a very bad week and could use a kind word of encouragement please.
I have been diagnosed as having rheumatoid arthritis, fibromyalgia, suspected lupus and sjogrens (for which I'm awaiting a lip biopsy) and I'm also hypothyroid. I haven't been able to work since April and haven't driven either, as the fatigue is just totally overwhelming.
After having some severe rashes, my rheumatologist prescribed steroids (dexamethasone) which have caused me to put on lots of weight. I also take hydroxychloroquine. He decided 3 weeks ago that he wanted me to gradually withdraw the steroids in order to give me a flare, so that he could then do further tests.
Whilst I was unhappy with the unwanted side-effects of the steroids, I now have much more pain. My lower back and hips hurt so much that I can hardly walk or stand for long enough to prepare a meal. I also have this constant feeling that I have a blockage in my throat. This has caused me to start feeling anxious and panicky. I often feel detached and extremely light-headed and become scared that I will black out. The constant fatigue, even after a decent nights sleep, makes me feel "other worldly" and this causes anxiety too. I can deal with pain much better than I can handle not feeling in control of my head.
I apologise if this has been rather long, but if anybody can relate to any of it and could offer a word of support, I would be very grateful.
Wishing you all a happy day, Jasmine.