I have APS, possible Sjogren's and I'm also now suspecting either Lupus or Vasculitis.
Over the last 3 months or so I've had far worse fatigue, terrible mental fatigue/fog, balance and coordination problems and breathlessness, which is possibly the worst symptom. I even wake up breathless. It's not extreme, but it's still very bothersome.
I've had steroids. 10mg/day initially, now 5mg/day. Energy is better (even better on 10mg than 5mg) but still breathless. Also a bit depressed - which is most unlike me and I hate feeling down. Is that the steroids??? And the steroids also make me feel wired, so difficult to sleep - so more fatigue, yadayadayadayada...
Not sure what to do. Any suggestions? I'm thinking of trying 10mg/day prednisolone again for, say, a week to see if that helps with the SOB. And, if not, talk again to my GP. Maybe ask for further tests - perhaps to look into vasculitis.
Could this be a reaction to prolonged stress? We have two - well, we HAD two, we lost one in July - elderly poorly cats, who've needed constant care, vet visits, worry and expense for over 18 months. Is this an AI flare in relation to stress? Could that explain the SOB? Usually when I get a flare, there's joint/muscle aches and pains, but none with this episode.
It's all just a bit muddled. And brain fog doesn't help UNmuddle it!