My sons birthday tomorrow he will be 6 ❤️ I’ve spent all day feels like wrapping my hands hurt and so do my legs bone pain is just throbbing away at me.
My consultants secretary has fudged up my appointments for my face scan and given me a follow up before my scan instead of after and now I can’t get a follow up until end of October which means I have nothing for my neurologist in June and everything is back on hold.
I don’t understand why I can’t get any help it isn’t like they can’t find anything brain lesions hip problems Facial swelling lymph nodes swelling tongue swelling eye pain muscle bloody twitching
But my bloods say I’m fine .. I’m so over this I’ve had it I’ve paid out thousands on scans all that show things!!!!
I’m so tired 💤 no one in this house cares ‘ if it was that bad they would know your fine ‘ well I don’t feel it I feel awful. All I see is people with actual diagnosis is it not bad enough can’t it just be straight forward treatment plan!! I feel like it’s only me I know it’s not but it feels that way
I feel like I’m moaning all the time I try not to cry incase I feel worse..
What am I missing what can I do why wont they help me