Lupus Secrets by Dr Donald Thomas: Lupus_Secrets_by... - LUPUS UK

LUPUS UK

32,210 members•28,555 posts

Lupus Secrets by Dr Donald Thomas

Djlr profile image
Djlr
•8 Replies

Lupus_Secrets_by_Donald_Thomas_May_2015_lupus_teleconference.pdf

kaleidoscopefightinglupus.o...

Helpful information for all of us💜

The Lupus Encyclopedia is available on Amazon and other book stores.

Written by
Djlr profile image
Djlr
To view profiles and participate in discussions please or .
Read more about...
8 Replies
•
thestorm profile image
thestorm

Hi Djlr, More great stuff posting, Thank you!!! And silly me, you recommended that book to me when I first joined up here in the hub, It is sitting next to me at my desk, I read it all the time. Everyone who can,I highly recommend getting this book. It is a world of information, insight, care , knowledge, it is my lupus bible. Are you the author??? Just wondering about the possible connection. Sorry, I had to ask. Web site is very intriguing, and I am sure that anyone here with us will want to take a look at the vast properties the site has to offer. I, like many of us with lupus, have trouble just making it through a day sometimes, let alone researching and reading about what is wrong with us today. Many times when we are down trotten, just knowing the hub is here 24-7, and asking fellow hubies is just the only comfort we need. This support system that spans the miles, and breaks all barriers brings us closer to each other than any generation before. Like threading a needle, we all could use a magnifying glass sometimes, and you are the thread that helps keep us together. Thank you Djlr for helping us stay that way. Keep posting and we will keep seeking the truth. peace blessings thestorm💕 Webinar is well worth watching!

Djlr profile image
Djlr• in reply tothestorm

Thanks - but I am not the author.🙃I just use this book a lot with my lupus support group. It’s great to know that we can help each other and share what we are learning.

Our Lupus group finds that the Lupus Encyclopedia is very helpful and also his videos for the basic Lupus Secrets, that he suggests in helping make our lives stronger living with lupus.

Some doctors do not always remind us of the “simple things that we can do” like avoiding “alfalfa sprouts” which can cause “joint pain in lupus patients” - it is their amino acid L canavanine which can disrupt our T and B lymphocytes in our autoimmune disease - lupus.

creakyjoints.org/diet-exerc...

hopkinslupus.org/lupus-info...

Also, his recommendation of a higher Vit. D level was even recommended by my “pharmacist” as a great defense against getting the flu- it builds our immune system the “correct way”. We are usually low in Vit D since we can’t be in the sun, etc....of course we should get a “flu shot”😊

dogtired profile image
dogtired• in reply toDjlr

Check dr len horowitz regarding flu vaccines.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK• in reply todogtired

I would encourage anyone reading about this person's opinions to do so with extreme scepticism. His claims are not supported by clinical evidence and his advice could be extremely dangerous and cost lives. There is a wealth of evidence showing that high-risk groups for flu have significantly higher mortality rates if they do not protect themselves with the annual vaccine. With a small minority of exceptions people with lupus are advised to get the flu vaccine due to their weakened immune system and increased risk of complications from the flu, such as pneumonia.

Roarah profile image
Roarah• in reply todogtired

Dr horowitz is a dentist/ political activist not an MD. Dr Thomas, who encourages vaccines, is a certified rheumatologist with real life knowledge of how beneficial vaccines are to patients.

Roarah profile image
Roarah• in reply toDjlr

I liked seeing his warning on Alfa sprouts and echinacea. I was diagnosed in the late nineties when echinacea was all the rage. Every well intentionioned friend would insist I try echinacea for my fatigue. As a vegetarian, I already ate a lot of alpha sprouts but decided to start echinacea and after just a month I broke out with a butterfly rash, had a very high ANA and was excreting protein in my urine. I ended up on deltasone for months. I have never touched vitamin c, alpha sprouts or echinacea since and have not needed any treatment for my kidneys or skin either. Reading his list is making me second guess my hesitation to go on HCQ when I do not have flare symptoms presently. Thank you for posting

SRiley profile image
SRiley• in reply toRoarah

That’s interesting Rorah. Before I took ill with myelitis at the start of the year, caused by some sort of auto-immune reaction, I was taking high doses of echinacea. I work in a school and didn’t want to get a cold as it was coming up to the half term break so I had increased my dose. It makes me wonder if it was a contributing factor to tipping me over the edge.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK• in reply toSRiley

SRiley , there have been studies which have shown that echinacea can trigger lupus flares, so it is possible.

Not what you're looking for?

You may also like...

Great Videos from Dr Donald Thomas- Author of The Lupus Encyclopedia

Dr Donald Thomas author of "The Lupus Encyclopedia" has been a great help to me. He has 3 videos...
Djlr profile image
•

St Thomas' Lupus Clinic cuts

Is anyone else on the patient list at Tommies lupus clinic? It's called the Louise Coote Clinic?...
Helly72 profile image
•

Lupus Arthritis ??

My elderly mother has been diagnosed with Lupus Arthritis. She insists she does not have 'lupus'...
maiajudith profile image
•

Guy's and St Thomas' lupus clinic?

Okay so I'm quite certain I have lupus. Fits all my symptoms and the time frame and I can't work...
BubbleMonkey profile image
•

Just read in Lupus News & Views: Lupus UK has...

..achieved Information Standard accreditation....so Lupus UK publications will now be listed on NHS...
EOLHPC profile image
•

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.