Subacute lupus: Last year I was diagnosed with... - LUPUS UK

LUPUS UK

32,210 members28,555 posts

Subacute lupus

Joy50 profile image
6 Replies

Last year I was diagnosed with subacute lupus, most information is about discoid and systemic lupus that I read so I'm starting to get confused......

Written by
Joy50 profile image
Joy50
To view profiles and participate in discussions please or .
Read more about...
6 Replies
custardpot profile image
custardpot

This might help you

srft.nhs.uk/EasysiteWeb/get...

emedicine.medscape.com/arti...

bad.org.uk/for-the-public/p...

dermnetnz.org/immune/cutane...

These are just a few of what I found

Christine

Joy50 profile image
Joy50 in reply tocustardpot

Thank you I now know that a lot of my symptoms like hair loss muscle aches fevers and tiredness to name a few, is mainly caused by the mountain of medication I'm taking, that's where I was getting confused....thank you again for your help

Wendy39 profile image
Wendy39

Hello. And welcome to Health Unlocked. I have subacute cutaneous lupus (SCLE) too. Diagnosed in November 2013. I know what you mean about the info. All SLE or DLE. Not much for us out there. I have bought lots of books and I learn a lot from this site. The support from this site and it's amazing members, is invaluable to me. Happy to try to help in any way. I have posted quite a few questions since 2013 and you can learn a lot by just reading others posts. Best wishes.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Joy50,

We have a booklet called, 'Lupus and the Skin' which you can download from lupusuk.org.uk/publications/ It includes some information about subacute cutaneous lupus. If you have any particular areas that you find most confusing, please let me know and I'll do my best to find you relevant information to make things clearer.

Joy50 profile image
Joy50 in reply toPaul_Howard

Thank you I will have a look.....

AnnNY profile image
AnnNY

It sounds like it mean you feel miserable, but your organs are in good shape. Also, perhaps your blood markers are not very bad.

Not what you're looking for?

You may also like...

subacute cutaneous lupus

Just a query really, can the skin rash itch with SCLE, mine has never itched but recently where...
madhead profile image

Subacute cutaneous lupus

Had my 1st appointment with rheumatologist. Had lots of blood tests which I’m waiting for results...
Raven_claw profile image

Subacute lupus skin rash

Has anyone had severe lupus skin rash and it’s cleared? How long did it take ? 😭

Subacute cutaneous lupus prescriptions

Earlier this year I was diagnosed but this week was the first real hospital appointment (albeit a...
Raven_claw profile image

Lupus

Hi I have had lupus for nine years now but recently I have been suffering with back ache day and...
djsema profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.