Factor 50 : Just wondering if anyone else has had... - LUPUS UK

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Factor 50

Willow1414 profile image
14 Replies

Just wondering if anyone else has had their prescription cut for factor 50 .

I’ve just checked my app for prescribing , now says refused ????

Really don’t understand why having lupus and light sensitivity to the extreme ,why my practice ca n put refused of my prescription , and not even bother to contact me .

Shame on the NHS .

😡

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Willow1414 profile image
Willow1414
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14 Replies
sarahalice profile image
sarahalice

Hi Willow.

That really isn't fair! I think we have to pay too much to be ill as it is!

I got mine last month, so will have to see if I have it this month. The 1 I get from the docs reacts with my face and I get even more rashes. So I also use Malibu face 50+. I get it from Home Bargains where their Suncreams are very cheap compared to the likes of boots.

Sarah x

Yellow5 profile image
Yellow5

I have just had factor 50 prescribed for the first time by my GP yesterday. I hope you get it sorted. X

Ianrussell69 profile image
Ianrussell69

Unfortunately I’ve never been able to get sun block on prescription,but Burton working in a dusty environment I use factor 30 dry oil it’s brilliant

I used to get vitamin d on prescription but have been told I need to buy it in future. I think they must be looking for savings.

Unless it comes back to bite them there will probably be a lot more of it.

Joy_1 profile image
Joy_1

I was told by my GP practice + area pharmacist about 2 months ago that a number of meds that were once available on prescription will have to be purchased over the counter. I was told it was down to cuts. This even includes children's meds.

The pharmacist was quite angry as he was annoyed that once again the cuts we see in England do not apply to Scotland.

No comments from others please about politics, I am merely stating what the pharmacist told me.

Willow1414 profile image
Willow1414 in reply toJoy_1

Hi Everyone.

Thank you for your reply’s .

I’ve just read the NHS webpage for prescribing factor 50 for people with lupus .

It states you can still get on prescription . The next review will be 2021,

So I have my backup , got appointment on Wednesday next week ,secretary says I’m down for a review of my meds .

Strange how everything left on repeats except factor 50 . I’m wondering if the secretary has found a cure for SLE and Sjowgrens 😂😎😃🧐🙄🦋

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Willow1414 ,

I'm sorry to hear that this has happened, but since you have a diagnosis of lupus you have a defined clinical need and therefore are still eligible for prescriptions of high factor sunscreen. I would recommend that you speak to your consultant or specialist nurse and ask them to write to your GP requesting that they prescribe it for you.

We will have a printable information sheet about this shortly which I will share in the forum. It was written by a Specialist Lupus Nurse and is just being checked by Prof Caroline Gordon before we publish it.

Willow1414 profile image
Willow1414 in reply toPaul_Howard

Hi Paul .

Thank you so much for your reply .

I hope I can sort it .

😡

Willow1414 profile image
Willow1414 in reply toPaul_Howard

Factor 50

Hi Paul

Thank you for the information , it was incredibly helpful , it’s now back on my repeats prescriptions .

My Doctor requested I get a printout for the practice has it would be helpful.

Do you have the link at all so I can print off please ?

⭐️

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply toWillow1414

We don't have the article quite yet, but as soon as I do I will post a link within this forum for everyone :)

Willow1414 profile image
Willow1414 in reply toPaul_Howard

Morning Paul

Thank you for your reply .

⭐️

Caramia1964 profile image
Caramia1964

hi had factor 50 last month on prescription , after my rheumatologist asked for it in her letter to GP. I am in Scotland .

Wishie profile image
Wishie

I’ve had mine stopped too, I have tried calling the medicine manager for the past 3 weeks to discuss it. She is always in a meeting and never returns my calls, very frustrating. My GP says it’s up to the prescription pod people andvto contact them, but she will not speak to me, so I am left dangling.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Mum2 . The review by the NHS did agree to stop prescribing sunscreen, with the exception of those who have a defined clinical need, such as people with lupus.

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