Although I have made a nearly complete recovery from last year's myositis flare, my overall condition has worsened. Most especially, the "chronic fatigue"/"Fibromyalgia" symptoms have now rendered me virtually housebound and feeling unwell 24/7.
Although I emailed him last month to explain how desperate things had become, my rheumy decided that my recent review would be best handled by a registrar I'd never met. He advised continuing with the same management plan that has gotten me to this point - 'and review in 6 months'. At the current rate, I will be pushing up the daisies in 6 months, so desperate measures were called for.
Luckily, I have the support of this forum, and my GP, and so this afternoon, I am heading to the surgery for the first of a course of B12 injections. I have completely normal B12 and folate serology, but as she says, "We are all out of other ideas".
I'm so grateful to Foggyme for helping persuade her to give this a try; other outlandish ideas are likely to follow. I will post again when able ! x