Hello : Hello everyone. I am sorry that I haven’t... - LUPUS UK

LUPUS UK

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Hello

CecilyParsley profile image
49 Replies

Hello everyone. I am sorry that I haven’t posted recently. I have been struggling with lots of issues, medical and otherwise which have made me sad, frustrated and low. The one wonderful positive in my life is Finlay. He is such a beautiful, funny, loving little boy. Hubby has torn a tendon in his knee so has been unable to walk him so Finlay goes out with up to 12 other dogs with the most fabulous dog Walker. They get different places to explore and on Saturdays have an adventure park day. We get photos after every walk and on fun days we get a video which is truly wonderful. My littke red cocker often comes back grey with mud but it washes off and the fun, the socialisation and confidence he if building is priceless. I truly hope that you are all as well as you can be and enjoying the warmer weather here in the UK. Much love to you xxx

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CecilyParsley profile image
CecilyParsley
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49 Replies
GloomyEeyore profile image
GloomyEeyore

I am sorry to hear that you have been struggling. It is wonderful that you have Finlay. He is a beautiful dog. Sounds like he is having a wonderful time on his walks. Adventure Park day sounds like so much fun!

I hope that you feel more positive soon. Hopefully Hubby’s tendon will recover quickly, although maybe Finlay would think otherwise if he stops going out with other dogs! 🐶 🐩 🐕 ⚽️

CecilyParsley profile image
CecilyParsley in reply to GloomyEeyore

Thank you so much. Finlay was going twice a week anyway as I wanted him to have a good run. They literally race around, go in the river, roll in mud, chase one another. I wish I could afford for him to go everyday all the time but unless I win the Lotto he will have to go back to two days and the adventure park every two weeks when hubby is healed. He is such a beautiful boy and the pure joy he brings us both is amazing xxx

Waulahn5 profile image
Waulahn5

I’m so sorry to hear about your health issues. It’s been awhile since I posted myself too. Similar to you I have had some nasty health issues too.

I’m glad you have your paw pal who is I’m sure wonderful company. I’m glad there is a good dog walker, that’s one less thing for you to worry about. Hope you husband heals soon. It’s not a quick recovery with that sort of thing

But this is a wonderful community to be a part of. Its a cliche, but you don’t feel alone

Sending positive vibes and prayers your way

CecilyParsley profile image
CecilyParsley in reply to Waulahn5

Thank you so much. I sincerely hope you start to feel better. I agree about this wonderful community it does make you feel less isolated xx

Hoofprints profile image
Hoofprints

Beautiful photograph - Finlay looks handsome and full of life and joy. I am sorry you are having a tough time - hang on in there. So sorry that your husband has that injury. Painful and slower than bones to heal o think, but hopefully his pain is well managed 🤞 and he will heal in time. Take care

CecilyParsley profile image
CecilyParsley in reply to Hoofprints

Honestly they have given him no pain meds. He literally screams each time he moves. His knee is massively swollen and lumpy, It is a good job he knows someone with pain meds eh? Finlay is so gorgeous thank you xxx

Oshgosh profile image
Oshgosh in reply to CecilyParsley

ibrufen helps as well as the pain meds.

Tykle profile image
Tykle

Lucky Finlay, what a lovely experience for him in all that mud! Years ago, I had a Jack Russell and his favourite thing was to roll in dead seagulls on the beach. That wasn't so easy to wash out! Dogs will be dogs and we love them for it. I hope hubby recovers soon and Finlay keeps brightening those tough days. x

CecilyParsley profile image
CecilyParsley in reply to Tykle

Thank you so much. Although he looks like a dream with his beautiful coat he just loves digging holes, rolling in mud and going in the water. I am so happy for him. He is a real cuddle monster too. Pure joy xxx

Oshgosh profile image
Oshgosh in reply to Tykle

my German shepherd dog used to love rolling on dead hedgehog,the smellier the better.

CecilyParsley profile image
CecilyParsley in reply to Oshgosh

oh no 🤢 xxx

Oshgosh profile image
Oshgosh in reply to CecilyParsley

she had a habit of rolling so much it all got into her plaited leather collar.

I got sick of easing dog and collar

CecilyParsley profile image
CecilyParsley in reply to Oshgosh

She did a good job then 😂. We bought a Mud Daddy so Finlay gets washed with warm soapy water in the garden xx

Oshgosh profile image
Oshgosh in reply to CecilyParsley

lucky Finlay x

Tykle profile image
Tykle in reply to Oshgosh

Oh, the sight of an upside down squirming dog in complete heaven!

thestorm profile image
thestorm

Hi dear Cc, always a spiritual uplifting to here of your fur baby, and all the unrivaled, irresistible, unconditional love and healing they bring to us all..,How could we not look at those faces and smile ear to ear. Thank you.... I am praying you get some relief, and less warmer weather. 32.22 Celsius here for next ten days. Loathing this my self. Not normal for this time of year 😭.. but we will prevail, lol. Sending all my blessings peace and love, The Stormy Sunshine 😊🌻😎💐😇🐺🐺💖

CecilyParsley profile image
CecilyParsley in reply to thestorm

Absolutely dogs make everything better. How is the gorgeous Storm? How are you doing? Much love back to you both xxx🌞🐾🐾

cross2 profile image
cross2

Sorry you are struggling but dogs can certainly help to change your mood. I had over the past 10 years, 4 dogue de Bordeau and loved every single one of them, their patience, gentleness and even their slobbers. Hope all goes well with the tendon.

red large dog
CecilyParsley profile image
CecilyParsley in reply to cross2

What a gorgeous dog. I never realised 7ntil I saw the photos and videos of Finlay with Pumba ( the Dog de Bordeaux in the photo) that they were such playful lovely dogs xx

KnitSewPurl profile image
KnitSewPurl

Aww..sorry to hear about you not doing so well and your hubby too. But glad that you manage to find someone to take your dog Finlay for walks. Finlay is a beautiful dog. I am sure he is loved very much.

Sending hugs and love to you and Finlay xxx🥰

CecilyParsley profile image
CecilyParsley in reply to KnitSewPurl

Thank you so much. We absolute love Finlay. He has helped us with our grief from losing both our beautiful boys last year. We still miss them dreadfully but Finlay fills our hearts with joy and love. Lots of love back to you xxx

BonnyB profile image
BonnyB

Hes a darling, dogs help so much through tough times. Much love x

CecilyParsley profile image
CecilyParsley in reply to BonnyB

Thank you yes they certainly do. Much love back to you BonnyB xx

Chris21 profile image
Chris21

so glad you popped by, as I was only thinking the other day, I hadn’t seen a message lately and hoped all was ok. Sorry you’ve been going through a rough patch and hubby’s painful knee, must be frustrating as well as painful, tendons take so long to heal. 😔

Finlay sounds as if he is having a lovely adventure playing with the other dogs and then coming home for cuddles 😁

Best wishes to you all x

CecilyParsley profile image
CecilyParsley in reply to Chris21

Thank you so much Chris for your kindness. I guess I just haven’t wanted to moan and as my new Rheumatologist is not ruling out Lupus but definitely veering towards Bechets I feel a bit of a fraud on here. Whatever my diagnosis the pain and issues remain . I am still doing my wonky pottery and trying to grow fruit and veg in my garden and cooking and baking which all brings me joy and laughter but Finlay makes my heart smile and brings me such happiness with his antics. Getting the photos and videos really help, as if I was there with him. I hope that you too are doing as well as you can? Xx

Chris21 profile image
Chris21 in reply to CecilyParsley

I don’t think it matters what condition you have as all autoimmune disease seems to have similar types of difficulty. I have lupus sle with sjogrens overlap and I’m sure it’s sjogrens that cause most of my problem of dryness! I’m not doing too bad at the moment thanks, hands won’t work so well but there’s always a way.

We don’t own a dog but have our daughters springer every day while she works, he too makes us chuckle with his antics, he’s spoilt rotten and sometimes has a sleepover, just like the grandchildren 😂

CecilyParsley profile image
CecilyParsley in reply to Chris21

oh how lovely Chris a grand dog. I agree there is so much overlap. For fourteen years Rheumatologists have differed about my diagnosis. It changes at every visit.My hands are awful currently too. You would think they would be better in the warmer weather. AI sucks whatever it is called . Take care xx

dg70 profile image
dg70

Its tough we love our dogs but also I feel how much longer can I cope with all that looking after. walking, trimming, grooming. We inherited ours from my daughter when she went into a rented flat. He's lovely and snuggles up to me but sometimes I just don't have the energy for him and I with brain fog I forget to put his biscuits out sometimes and he doesn't tell me I have forgotten this! My husband is often working and doesn't always have time to walk him and some days I find my joints won't play ball for a long walk yet getting out in the open, chatting to people is so good for us. We have a dilemma owning pets and having autoimmune conditions. This is my last dog now I think, I can't bear losing any more and realistically can't keep looking after something long term. Let's love them whilst we've got them. ❤️😍🐩

CecilyParsley profile image
CecilyParsley

I love getting out with Finlay but since I tore my hamstring, then my meniscus my balance is poor and my nerve pain is debilitating. I am trying to strengthen my legs to get back out there as you are so right it does so much for our mental health getting out of the house and meeting people and other dogs. My hubby walks Finlay three times a day normally but he doesn’t have the chance to run free as he does with the dog walker and of course the chance to play with other dogs so we were using the dog Walker twice a week and on the Saturday adventure days. I do hope that you can get out with your dog sometimes as much for you as for the dog. When I was healthy I used dog walkers whilst I was at work so it is no different really. Take care xx

MEGS53 profile image
MEGS53

so sorry to hear you’re struggling just now. Hope you feel better soon 🤗🤗🤗🤗🤗

CecilyParsley profile image
CecilyParsley in reply to MEGS53

Thank you Meg. How are you doing? Xxx

MEGS53 profile image
MEGS53 in reply to CecilyParsley

aching tbh, think I’ve done a bit too much recently.

Fancy sending Finlay over to me for a cuddle session 🤗🤗🤗🤗🤗

CecilyParsley profile image
CecilyParsley in reply to MEGS53

He would snog your face off Meg. It is so funny Neil goes to bed first and Finlay goes with him but if I am not joining them in five minutes down the stairs he comes and growls at me. If I fail to pack up my I Pad immediately he jumps on me and puts his nose over the screen, followed by a paw. I give in and he is so happy stopping on every step in front of me to kiss my nose. I love him so dearly. Like you I have done too much too. As Neil cannot walk far or carry anything heavy it is down to me. I usually only go up and down stairs once a day but now it is up to six times, carrying compost, shopping, laundry. I am having to wear my arm cuffs and my feet are like balloons. I do hope he gets some help with it. I hope also that you can rest up and ease your aches and pains lovely. Finlay is available any time xxx

MEGS53 profile image
MEGS53 in reply to CecilyParsley

take care 🤗🤗🤗🤗

Cuddles to all 🐾🐾🐾🐾🐾

Krazykat26 profile image
Krazykat26

Oh those ears 😍Bet they feel like silk!! It's good to hear from you Cecily 🤗It's funny how we often think of each other when someone is quiet. That usually means one of two things..either they are having a great time or they're having a miserable time. With us it tends to be the latter! I've been thinking about you often n sending you a spoon when I'm able to 🥄🥄🥄Here's a couple for you lovely. I hope things start to improve for you soon 💜🌈xx

CecilyParsley profile image
CecilyParsley in reply to Krazykat26

yes they are silky soft as is the rest of him ( except his teeth). He is like a living teddy bear bless him, so loving. He brings us both such pure joy. How are you my lovely? How is the car? I bet it makes life so much easier for you and hubby? Thank you for the spoons, much appreciated. Much love sent your way xxx

Krazykat26 profile image
Krazykat26 in reply to CecilyParsley

Oh yes it's great thank you.🚗 We've been out this morning..I've been doing methotrexate injection training. We went for a little drive into the countryside afterwards n we found a wonderful field totally covered in buttercups. Weather was overcast n chilly so I could get out n feel the wind on my face n listen to the birdsong. Saw two red kites too which were directly over us...marvellous!! We've got a long haired Jack Russel so she's quite coarse fur on her outer coat but when I trim here the undercoat is lovely n soft.

I'll send a pic of the buttercups. 💜🌈Xx

Field of buttercups
CecilyParsley profile image
CecilyParsley in reply to Krazykat26

Beautiful. I am so pleased the car has given you the opportunity to experience nature. It helps in so many ways xxx

Pumpkin2009 profile image
Pumpkin2009

Love the picture! So sorry for all that you and your husband are going through. I know how much joy and comfort you get from Finley because my Pumpkin and Gigi give me something to look forward to everydayl I don't know how I would get through some days without their unconditional love. how things start to get better for you all soonl

Healing hugs.

CecilyParsley profile image
CecilyParsley in reply to Pumpkin2009

Thank you Pumkin I am sure they do. Animals give us so much unconditional love and improve our lives immensely. Thanks for the hugs too always welcome. Big Cwtches back to you and Pumkin and Gigi 🐾🐾🐾🐾 xxx

Hi Cecily

I’m so sorry to read that you’ve been struggling so much all ways round. Bad things seem to like company, so come in twos and three’s plus they also seem to prefer to arrive when we are too poorly and have no spare capacity to deal with them 😬

I’m pleased you have the very beautiful Finlay, who’ll be such a comfort and pets bring a little bit of light on a dark day. I hope your hubby’s knee heals soon and it sounds as if Finlay is having the best time, going out on adventures with his gang of mates and then coming home to both of you - I bet he’s spoiled rotten - in the best way obvs! It’s so good that you’ve reached out, I hope things get so much better for you soon.

Take care ✨

CecilyParsley profile image
CecilyParsley in reply to

That is so kind of you thank you so much. I have just felt unheard when I thought my enforced change of surgery after 32 years was going well then they lied and ignored me. I have now let them know that I desperately need to be seen by a Urinary Gynaecologist as they promised in February and at last the referral has been done so there is hope. Finlay is only ten months old so cheeky, playful, into everything and so loving. We adore him and he is spoiled rotten but what he gives us is far more precious xx

in reply to CecilyParsley

Oh no! I am so sorry for you, some really have no idea as to the power of what they do (or don’t do) has. It undermines everything. Well we hear you - it’s not to same as your medics who really do need to hear, see and understand you - but we do. That’s one good thing, a referral - absolutely, it’s hopeful, a step in the right direction. In the meantime, I hope you’re going easy on yourself and are able to do something nice, just for you, each day, however small/tiny. It’s important and easily forgotten when things are difficult.

I’d imagine what you give Finlay is equally precious! A ball of joyful fluffy energy - sounds blissful, give him a little cuddle from me too. ✨

CecilyParsley profile image
CecilyParsley in reply to

yes a referral is a start. I am not looking forward to the investigations that will come with it but after four years of pelvic pain I need some help.I will give Finlay a hug from you. I never need an excuse. He sometimes runs now because he knows I want to smooch him lol xx

in reply to CecilyParsley

A start, progress, which is something, as to be in such pain for so long... As you know, you need and have a right to the help. No, I get that it’s not going to be nice (but you can ask for meds), but it’ll be another step, giving you the answers you so desperately need.

Thank you, or even an ear stroke 😄. Seems Finlay’s made up a new game ‘smooch chase’!✨

CecilyParsley profile image
CecilyParsley in reply to

Thank you so much. I really appreciate your encouragement xx

in reply to CecilyParsley

You take care, sending a spare virtual 🤗 and keep us posted ✨

Butt3rf1y profile image
Butt3rf1y

Hi, beautiful picture hope partner is better soon.

CecilyParsley profile image
CecilyParsley in reply to Butt3rf1y

Thank you so much xx

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