Rituximab

[dzagotskillz]

I have just been awarded funding for this drug which has taken a year! Wondered if anyone had it and what there experience is?

[sylviaweller_79]

Yea I had it a couple times and it's absolutely amazing!! I would recommend it to anyone. If they can get funding for it do bit!!! I was going through serious flare when I had it, the day after I was up and about and the pains were gone. I had so much energy it was scary.

[Hidden]

I think there are multiple indications for this medication.

I'm not too sure about the side effects profile of this medication.

Am I right to think that you went through all the other medications which did not quite work out if you don't mind me asking this?

My hat's off to you for your perseverance and that of your clinician.

Best wishes,

[dzagotskillz in reply to Hidden]

Hi omega

I am taking a lot of medication at the moment. I have two ulcers on my right ankle which have been here for years.

Very painful and struggle. Doc reckons rituximab may help.

Give anything ago at the moment!

[onamission]

Its so sad when we find a drug that works and we have to get funded for it and look at all the waste in the NHS

[dzagotskillz in reply to onamission]

I had to take other medication before they would even consider finding. It's ridiculous especially when you're suffering with pain

[Hidden]

I have had Rituximab twice in one year now, and had no nasty side effects, in fact it really helped my cough,(lupus in my lungs) and I hardly cough at all now. I also felt less fuzzy headed, but the aches and pains and tiredness were just the same. Can't win everything! I always know when it is wearing off, as I feel worse again. Hope you have good results, do let us know.

[angus50]

Hi I get it about twice a year and yes it certainly makes a difference I had a few side affects with it but hey the affects of it out way them. It doesn't seems to last too long but it's great for a while. I wish you all the best with it and hope that it assists you.