Sacroiliitis

[Fennella02]

Hello again

I am currently in agoneeeee with pain in my left hip/buttock area and low back. My GP gave me a thorough going over yesterday and between us could find nowhere that made me cry out yet I can’t walk, sleep, move etc etc. Sacroiliitis is a possibility.

She’s given me tramadol in the first instance and is phoning tomorrow - I’m assuming the pain is potentially the result of 6 weeks of coughing but I do have soreness in other joints so a flare isn’t impossible. Has anyone else had Sacroiliitis with their lupus or other AI conditions?

Many thanks for reading x

[weathervane]

Hi Fennella , i do know what you are going through ☹️I had sacroiliac pain along with hip bursitis, I could hardly move and couldn’t sleep pain killers didn’t help . I got a guided steroid injection which really helped the sacroiliac pain, it has hardly bothered me since, the bursitis is a different matter as it keeps flaring up . I don’t know what brought it on at the time, it was 3 years ago before I finally got diagnosed with Sjögrens.

I hope you are able to get help as the pain is awfully debilitating , best wishes xx

[Fennella02 in reply to weathervane]

So, I’m not alone! Yes, you’re right, the pain is awful. The tramadol is making me feel pretty grotty too with very little impact on the pain - it’s certainly not a painkiller that I would reach for another time. My dog took it for a year for a disc issue and I wonder now if it helped him either. . It hasn’t even helped the achey knees and tennis elbow ☹️.

My GP was muttering about amytryptiline (sp), did you try that and, if you did, was it effective?

My worry is that this could go on to become a repeated occurrence if the Lupus is to blame and I need to try to find better analgesia. Currently walking around with a hottie stuffed down my trousers 🤣

Thanks so so much for sharing your experience, it’s really helped xx

[weathervane in reply to Fennella02]

I was told there was a chance it could come back after steroid injection but it hasn’t really annoyed me since . Best wishes x

[suemh2]

Hi. I sympathise, having OA in both hips, collapsed discs in my spine and reoccurring Sacroililitis. I've just had a steroid injection, helped a bit. I had been on a high dose of Tramadol but it stopped being effective, can't take Naproxen due to gastritis and a stomach ulcer, so running out of pain relief options. It's good that your GP is supporting you. X

[Fennella02 in reply to suemh2]

She’s a very good GP. What do you think causes your sacroiliitis? Is it from the OA? I’ve found tramadol as good as useless - the only impact it has made is by way of side effects. Most bizarre.

Thank you for sharing xx

[Hidden]

hi there- my younger sister has this but its related to rheumatoiod arthritis, she has steroid injections evry 4 months for all her pain and is waiting to trial a new anti inflammatory injected med, she too takes tramadol with paracetamol.

[Fennella02 in reply to Hidden]

Hi. It sounds as though steroid injections are the way to go for persistent sacroiliitis. This is my first time so I shall have to watch and wait to see if it recurs. Thanks for your reply x

[Kikime]

Hi,

I also have Sacroiliitis (diagnosed by an MRI), and the only thing that has helped is Indomethacin and codeine combo. I hope you find relief soon.

[Fennella02 in reply to Kikime]

Hi. I usually get great relief from codeine and paracetamol high strength but not with this. Nor the nurofen but perhaps indimethacin would be more effective. Tramadol is like taking a placebo! Thanks for your reply xx

[Oscarbella]

Hi, I’ve not had sacroiliitis, but for the last 4 months I’ve had bursitis and tendinitis of the shoulder. Been in a great deal of pain. I saw my rheumy a week ago and he put me on celecoxib. This has definitely helped with the pain, hasn’t gone completely, just enough for me to maybe do some physio. I believe it helps with the inflammation to . Hope the pain goes away soon for you x

[Fennella02 in reply to Oscarbella]

Thanks so much for this. I shall google Celecoxib and see if i can ask my GP for it. She’s very keen to help. I cant get over how ineffective Tramadol has been for me - the only thing about it that I’ve noticed has been the side effects!

Thank you for sharing your story x

[Imom]

Hi. I had/have had the same pIn for about a year and a half. My rheumy sent me for physical therapy and it helped immensely. Now when it hurts I do several exercises and the stretching relieves it. I have just recently started with a holistic chiropractor and that has helped to relieve pain, also that in my bad knee, although my adjustment is only lasting a week. You might try some exercises from the internet. Good luck. It can be so painful, I know.