Autoimmune hepatitis

[bleeny]

I posted a few weeks ago as my rheumatologist sent me for hepatitis blood tests and I was worried sick! I saw him today and he said I had a positive result for autoimmune hepatitis. He is referring me to a liver specialist, but with no urgency which has reassured me. I am on hydroxychloroquine for the lupus and he said I will probably be put on azathioprine by liver consultant. Is there anyone on here with lupus and AIH? Any advice gratefully received. By the way, I seem to be lucky enough to have a rheumy who is so kind and positive.

[Cottar]

Good to hear your rheumatologist is so thorough, hope the outcome from

[Cottar in reply to Cottar]

Sorry, swiped the wrong way there...... to continue.... hope the outcome from your liver specialist is as helpful. I’ve just been diagnosed with lupus but when I look back, I could have had it for years. I’m saying this because I also had a bout of what might have been hepatitis although my GP couldn’t positively diagnose it. Perhaps this could have been due to an autoimmune disorder. Just a thought. Anyways, I seem to be fine now with my liver working well so I hope your outcome is as good. 😁

[bleeny in reply to Cottar]

Thank you Cottar.

[MarkJT]

Hi Bleeny - AIH is where it all started for me. I was initially being treated for some joint pain and was given a steroid injection by a rheumatologist, who also took my bloods. The next day she called my GP and said my ALT reading was sky high (over 600 when it should below 40). I did not feel particularly ill but was advised to attend A and E. The reading came down thankfully and I was referred to a liver specialist, who advised a biopsy and confirmed AIH. I was initially on azathioprine but am now on hydroxychloroquine and my ALT and LFT readings have been ok ever since.

Best wishes

Mark

[bleeny in reply to MarkJT]

Thank you Mark - I'm glad you're ok now after what must have been quite a scary time.