I was diagnosed with SLE last year when I developed Hepatitis and came down with really bad headaches, pain and stiffness in my neck and shoulders rigor and other flu like symptoms,my Rheumatologist deduced that it was just that, 'an autoimmune Hepatitis' commenced me on hydroxy 200mg twice a day and it settled after several weeks of rest. I have since had severe headaches treated with propranolol and a bout of uveitis. My ESR and CRP are always normal even with the Hepatitis. I have now developed a swollen face worse on exertion tightness in my chest and hoarseness coming and going, so I did some investigating, and I think I may have developed autoimmune vasculitis. My Rheumatologist categorically dismissed my concerns and said the symptoms of vasculitis are " very specific" and I believe he said this because of the negative ESR/CRP. Does anyone have any experience of vasculitis and also have negative ESR/CRP? I have been unwell for so long now I fear I may lose my job and never feel well again but according to my Rheumatologist my Lupus indicators suggest all is quiet with it now.
Regards and Wellness wished for you all. X