Further to my last post about an appaling consultation with current rheumatologist I'm trying to get my dizzy head around the above issue.
I've read here that many have have good outcomes following consultations with Prof. David Cruz or Dr Giovanni Sanna at the London Bridge Hospital, so am considering going down this route in order to get things moving in - hopefully - the right direction (three plus years as a practically non-functioning blob is, well, enough).
So...if anyone has been down this route and can clarify, as follows, I’d be truly grateful...
1) if I do go and they put together a treatment plan, is this something my GP will follow (thinking here of shared care agreements and how this works when private consultations are involved). Also worth noting that my GP is less than helpful.
2) if a different drug regime is prescribed, will I have to pay private prescription fees or are these available via an NHS prescription (I guess this could be quite expensive).
3) following an initial private consultation, is it possible for either of these doctors to request a transfer of care to the NHS. Thinking here of transfer to Birmingham Lupus Centre of Excellence, since travelling to Guys on a regular basis may be beyond me, at the moment.
I think the bottom line here is that if it were a matter of six to twelve monthly treatment reviews (and then management via NHS GP) then I could manage private fees. However, if more intensive investigations or treatments were needed, then this would be a real struggle (impossible) if I had to pay privately.
I really need to do something to try an get some health back but am concerned that I may end up 'locked out' of NHS healthcare (such as it is!). So...any advice or tips anyone could give would be very much appreciated.
By way of an update...I have two appointments coming up with opthomologist and neurologist. Once I receive letters following these consultations I'm going to move forward, one way or another.
Annoyingly, letter following recent rheumatology appointment states that he cannot 'clinically substantiate any symptoms which require an escalation or change of treatment' (he was not even prepared to discuss symptoms!). Sigh.
Thanks all xx