Book to give away..

[tjo52]

Hi everyone..just wondered if anyone would like my copy of "What the hell is wrong with me?..My autoimmune adventure.. by Richard Connery..it's an interesting read very much his experience however but something will resonate.. happy to post it to you..thanks everyine for sharing your post and reminding us "its not just me" have a good weekend everyone..😀xxx

[Lichenlife]

Hi,

I’ve just been diagnosed with Lupus. If your book is still available, I would be interested please. Happy to pass on through this site once read.

Thanks

[Happykins in reply to Lichenlife]

Would like to read it after you, if that's possible Lichenlife?

Really nice gesture for you to offer this tjo52 xx

[AndrewT in reply to Happykins]

Yes Please, can I 'Have' it, after you please? Maybe we can start a Library Of Members? Just a thought.

AndrewT

[Happykins in reply to AndrewT]

Yes, sounds great Andrew x

[tjo52 in reply to Lichenlife]

Hi there sorry if i have already messaged you ☺..happy to send it to you just let me have an address privately.. 😀

[Aliciasleet]

May i be next in line for the book? I would love to read it.

[BARTLETT1965]

Wouldn’t mind having a read when finished with it.

Jeff

[Lichenlife]

Thanks very much! And more than happy to send on to next interested bod, to forward again. A Library of Members is a great idea AndrewT. How do I message you privately tjo52? Am new to this site.

Best x

[tjo52 in reply to Lichenlife]

Hi there..good question..😀..never thought of that.?..email?..sorry I only have minimal IT skills..maybe others members can help,?..😀xx

[baba]

Click on username, this brings up another page with option to message

[tjo52 in reply to baba]

Thanks so much will give it a try..😀

[Lichenlife]

Thanks so much tjo52! The book and your card and little calendar arrived today. Really cheered me up to receive these. Was only diagnosed with Lupus last Friday - trying to get my head around it.

Have been struggling with a grim case of Costochondritis in all ribs since beginning of November, which is not showing signs of going yet. Trying to stay positive but wondering if my days of mountain walking, sea kayaking and lichen recording in remote special places will be something I just return to in my head when trying to get off to sleep or will they ever be a reality again. Feeling lost, lonely (in my diagnosis, not in life generally) and in horrible pain much of the time, especially through the nights. Very little sleep over the last month not helping. Oh dear, I only meant to write a line to say thank you!

Thank you so much x

[tjo52]

You are very welcome..sorry to hear your struggling..I do understand I too have Chondritis Enthesitis and uveitis and know how painful it can be..I was diagnosed at the lupus clinic in London and for around 10 years had no idea why I had pain in these points especially under my eyes and sternum..it's horrible when you can't sleep but I tend to try and relax and read and not try to get to sleep as it makes it more difficult to drop off..it usually works for me..wishing you well and believe you will do the things you love again..maybe a little differently but you will do them..take care..😀 xx

[Lichenlife]

Thanks for your warm encouragement x

Funny that when your book arrived I found we shared the same first name! And spelt the same. Made me feel connected as we’re also probably similar age, it being a popular name at one time. So we also share not just a name but Condritis. Not heard of Condritis Enthesitis. Am concerned that the longer this flare lasts the more damage it may be doing to my cartilage or that area that joins ribs to sternum. Though don’t know if it is permanently damaging it or just causing inflammation. Can’t find any info on-line. I’ll ask my GP about CE. Perhaps that’s a more accurate diagnosis. It is extremely painful without touching - just breathing. Had steroid injection last week which has finally done its magic so some relief, though still surfacing above this and Tramadol and Naproxen at times like last night when only managed a few hrs sleep.

Best,

Tracey x

[tjo52 in reply to Lichenlife]

Hi Tracey, I cant believe that, yes your right, I am 54, a 60`s baby..i remember my late Mum telling me there where no other Traceys around at the time,( only everyone i ever went school with) LOL..

I found it helpful to place a pillow under my rib when sleeping..it seems to work just giving a little support and the softness is comforting.

I dont really have the pain all the time however i have had it for a long time (about ten years) I take Meprecrine, Methotrexate and Hydroxyquine which does help..

I hope you are having a good day today and I do hope you will keep me updated on how you are feeling and remember we all need a little help some time, hope your back to enjoying the things you love, my belief is to always enjoy the little things, they are just as precious...Take care Tracey xx

[Lichenlife in reply to tjo52]

Thanks Tracey. Yes, funny how many Traceys there were in school, and yet I hardly ever meet one now!?

Pillow suggestion is a good one! Sleep is doing its level best to evade me right now. Will keep in touch.

Best, from a fellow T of 51 xxx