It’s Monday monthly Mira : Happy New Year to you... - LUPUS UK

LUPUS UK

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It’s Monday monthly Mira

svfarmer profile image
46 Replies

Happy New Year to you all - I took this pic at Christmas , Mira absolutely adores my son with Downs Syndrome as you can see here, she is so gentle with him .

Just an update on me - my kidneys are fine but my bloods are not so I’ve stopped my methotrexate and am having weekly blood tests but now I’m in an awful lupus flaire - the worst I’ve ever had but we are lupus warriors and just got to get on with it .

Have a lovely week everyone xx

46 Replies
stillsdisease profile image
stillsdisease

They look like best mates 😍Hope the flare is not too bad, sending gentle hugs 🤗

svfarmer profile image
svfarmer in reply to stillsdisease

🙏🤗😘

ExtremeDuvetDaze profile image
ExtremeDuvetDaze

What a lovely picture🥰Hope you start to feel better soon, that’s not a good start to the new year for you 😢…💕xx

svfarmer profile image
svfarmer in reply to ExtremeDuvetDaze

🙏🤗🥰

honeybug profile image
honeybug

Happy New Year too sv 🎊🎇🎆

Love ❤️ the pic of adorable Mira and your handsome son. What a great memory. Furbabies are so intuitive about health conditions of humans. Bless them both.

Hun I’m happy about your kidneys but so sorry about your bloods and your horrific lupus flare.

Just prayed for all of you sweetie.

Get better soon my sweet friend. 🤝❤️‍🩹

Much love sweetie.

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

svfarmer profile image
svfarmer in reply to honeybug

👍🙏🤗🤗💞

honeybug profile image
honeybug in reply to svfarmer

🤝🥰

MEGS53 profile image
MEGS53

Sending lots of gentle hugs and best wishes, 🤗🤗🤗🤗🤗🤗🤗

svfarmer profile image
svfarmer in reply to MEGS53

🙏🤗🤗💕

KayHimm profile image
KayHimm

Very sorry, SV, about the bloodwork. And now it’s causing a flair 😟. Will they be able to put you on steroids temporarily before the methotrexate stops doing its thing?

Thinking about you a lot.

😘😘 k

svfarmer profile image
svfarmer in reply to KayHimm

Thanks Kay I’m going to GP on Thursday so I will ask then - how are things with you ? Hope you had a good Christmas x

KayHimm profile image
KayHimm in reply to svfarmer

Things are good. Thanks. I am a bit relieved to have the holidays over with and into my routine. Glad I saw family before Omicron really hit.

Keep in touch. It shows how important to monitor people on these medications, right?

Xx

svfarmer profile image
svfarmer in reply to KayHimm

👍🤗💞

hopegalore20 profile image
hopegalore20

Hello svfarmer - lovely photo of your Son & Mira. Two happy spirits.Sorry to hear that your Lupus symptoms are in the worse state ever. Good to hear that your kidneys are functioning better.

Let's Hope the Blood Tests uncover the issue!

Fight on, stay strong.

svfarmer profile image
svfarmer in reply to hopegalore20

Thanks so much xx

Pumpkin2009 profile image
Pumpkin2009

Love the picture! Worried about your bloods and flare. Hope answers are found quickly and with quick fixes.

Hopeful and healing hugs.

svfarmer profile image
svfarmer in reply to Pumpkin2009

🙏🤗🥰

MrsMarigold profile image
MrsMarigold

Hi SVfarmer. Picture of your son and pup are heartwarming. And his thumbs up is so encouraging to me today and I’m sure others as well. I’m sorry the methotrexate is not working and causing flare. If it helps, you are not alone I’m also in quite a bad state. I’m nothing but a turnip in a chair. We didn’t start 2022 the way we’d like, yes? Here’s to later today, tomorrow and next week!🐶🐶🥳

svfarmer profile image
svfarmer in reply to MrsMarigold

Thanks for your lovely words Titters and I’m so sorry your having just as hard a time at it - my son lights up the room and am so grateful I have him as he is the sweetest sole you would ever meet.

Sending big gentle hugs to you 🤗🤗🥰

suzannah16 profile image
suzannah16

❤️

svfarmer profile image
svfarmer in reply to suzannah16

😘

suzannah16 profile image
suzannah16 in reply to svfarmer

sorry 🙃 just realised I only sent and emoji. I tend to think in shorthand [emoji's in my head] so I don't have to try to find those pesky words that go missing. That pup of yours knows when she's onto a good thing. comfy bed and tickles from your son. I bet he sneaks her snacks too.

svfarmer profile image
svfarmer in reply to suzannah16

It’s ok I knew what you meant - he gives her his crusts from his marmite on toast 😂🤗😘

suzannah16 profile image
suzannah16 in reply to svfarmer

rascals, him and her :)

CecilyParsley profile image
CecilyParsley

Oh no that is not a good start to the year for you. I am so sorry. Can your Rheumy suggest anything to help? Mira is just lovely. Your son is very handsome. How lovely that they are best buddies. I hope the awful flare can be tamed and that you start to recover. Big Cwtches to you xxx

svfarmer profile image
svfarmer in reply to CecilyParsley

My rheumy has suggested steriods which I’m not keen but I may not get a say in it - depends what my bloods say this week xx

CecilyParsley profile image
CecilyParsley in reply to svfarmer

Sometimes the dreaded steroids are necessary lovely. You just need to feel better xxx

svfarmer profile image
svfarmer in reply to CecilyParsley

Yes you are right xx

Spotty-ewe profile image
Spotty-ewe

So lovely to see Connor again with the adorable Mira. They look so happy and Connor is saying it all with the thumbs up. 😁So sorry to hear about your flare though SV. That’s a miserable start to the New Year. I hope your GP is able to help on Thursday. I find Cammomile tea with some honey helps to soothe things a little during flares. I hope this will soon pass and your happy event this summer will be something wonderful to look forward to. Take care and let us know how you get on.💕🤗😘xxx

svfarmer profile image
svfarmer in reply to Spotty-ewe

👍🙏🐶🤗💞

GloomyEeyore profile image
GloomyEeyore

What a beautiful picture. You can see the mutual love. ❤️❤️I hope that you get some help with your flare and that it doesn’t last long.

Virtual hug
svfarmer profile image
svfarmer in reply to GloomyEeyore

Thankyou so much and yes I received your virtual hug 🤗🤗🤗❤️

Krazykat26 profile image
Krazykat26

Lovely pic SV 🤗I'm sorry to hear you're flaring badly though 😔those tiny Methotrexate certainly keep things in check don't they? I hope it doesn't last too long n that you get alternative treatment ASAP!! You are a warrior..you know the drill..rest..rest n more rest!! Do whatever gives you comfort/pleasure. Don't be too hard on yourself..take it easy.

Finally accept some gentle cyber hugs from me 🤗🤗🤗🤗 Get well soon..you've got a wedding to plan!! 💜🌈😽😽Xx

Krazykat26 profile image
Krazykat26 in reply to Krazykat26

Thought I'd just add that I'm on Pred n I don't have puffy face side effects 🌈😽😽xx

svfarmer profile image
svfarmer in reply to Krazykat26

That’s good to know - Thankyou x

svfarmer profile image
svfarmer in reply to Krazykat26

🙏🤗😘

thestorm profile image
thestorm

Hi Sv, Lovely shared moment in time with the two of them....🙂🤗🤗 Thumbs up, is what my signal is to my storm, as he knows when my flairs are upon me too. So, sending Storm thumbs up to you that healing, and soothing remissions of those nasty symptoms leave you soon. Go to your happy place, and I pray the Doctor gives you some relief. Stay strong and proactive there. Much gentle love, The stormy sunshine:) Xxxxxx

svfarmer profile image
svfarmer in reply to thestorm

🐶🙏🤗🥰

mimiof9 profile image
mimiof9

That is the most serene and sweetest pic I've seen in a while. Thank you for sharing.

svfarmer profile image
svfarmer in reply to mimiof9

🐶🙏🤗💞

daniel55 profile image
daniel55

Mira and your son both look quite happy sorry to hear that you are having a bad time with your lupus sending you New Year hugs and hope you feel better soon xxxx

svfarmer profile image
svfarmer in reply to daniel55

👍🙏🤗♥️

Maddymay65 profile image
Maddymay65

MorningLovely photo of them both, Sorry to hear about your flare , that’s horrible , are you able to have steroids to help you through it. I do hope you feel better soon. It’s one day at a time isn’t it rest ,rest and rest .

Here is a photo of my cat Waffles, he has come to see me because I am not up yet. If I am in bed with a migraine , he stays with me until I am better, such a good nurse x

Mr Waffles , my little buddy ♥️
MrsMarigold profile image
MrsMarigold

Hey SV. Still been looking at Mira and your son. Really still makes me smile. I hope you are feeling a bit better? I told you I think I’m in a very bad flare as well. You are not alone. 🥳💕

svfarmer profile image
svfarmer in reply to MrsMarigold

Glad you like the pic of Mira and my son - I have felt abit better today Thankyou - hope your flaire dosnt last long - sending hugs 🤗🥰

svfarmer profile image
svfarmer

What a little cutie he is and so caring too - hope your migraine passes soon xx

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