I've been reducing from 7mg at the end of March in two-weekly steps. A month ago, I got to 4.5mg but after consultation here (!), decided to slow down a bit. So I have now been on 4.5 for a month.
Progress over these last two weeks has been patchy. Week 3 on 4.5 started well, but then deteriorated a bit. Week 4 started very well, with 4 consecutive good days. I could think of no reason for this, other than my body might have adjusted to being on a stable dose, so I decided to risk a visit to my daughter in university to celebrate her finishing her final exams.
Alas! No sooner had I arrived than a vigorous bout of the sweating, shaking and nausea that has tormented me over the past 8 months or so set in. The planned picnic was cancelled, followed by the celebratory dinner. My daughter didn't miss out - she went with friends - but I could do nothing but head back to my B&B to spend the evening with an iced flannel and junk TV . Joy!
Next day, I managed brunch but that was it. I could feel bad things brewing, so headed home before I was disabled. Back home now, I am hunched in my armchair with the usual array of meds and home remedies.
One thing that is apparent is that I seem to have an "all or nothing" presentation. Only my hand pain and swelling is constant. Otherwise, my symptoms of sweating, shaking, "heart pain", tachycardia, heartburn, and fatigue seem to come and go in a bunch. They might be mild, moderate or severe, but whatever it is, they are all at that same level. Which perhaps suggests they are part of a single underlying process. But whether this is a disease flare, a medication response, or a mixture of the two, I still don't know.