Hi this is my first time posting but like so many others it helps to know you’re not alone.
I was diagnosed in October last year with SLE, Infamortary Arthritis, Fibromyalgia and Sjögren’s Syndrome this all came on top of just being medically retired due to chronic pain following major back surgery in 2016, so life just threw another hurdle my way.
However in some respects at least it gave me an answer as to why I have been feeling so unwell.
But little did I know how unwell I was going to feel, I was started on Hydoxychloraquine and prednisolone and some months later Methotrexate all I can say is how chronically tired I feel with sore joints and muscles all the time plus the added bonus of chronic back pain, just to cheer my day.
I have a good rheumatologist and speciality nurse, my gp is pretty good too, other than that I have an 11 year old to look after on my own and elderly parents who need my help and support daily!
My fanatical worries are on top of this as well as I still waiting on PIP 😔
I don’t know what I expect from me writing this but it helps that I feel someone is listening, it can be very lonely battling such a horrible disease.
Thank you for listening ☺️