As my appointment is getting closer, I’m sitting ... - LUPUS UK

LUPUS UK

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As my appointment is getting closer, I’m sitting here doubting my own self. Does anyone else have a rash that presents itself differently ?

Lisalou19 profile image
6 Replies

The photo I am posting, shows a variation in how my rash exposes its self. The left photo is during a spike in my hormines, it burns like hell but no rise in body temperature.

The photo on the right, is a combination of a spike in hormones and persistent sun exposure for 5 days, while on holiday!

Been out in the sun today , first time in a while, and my skin on my face is now raised and a burning tingling sensation! The thought of being photosensitive is a nightmare. I’m also day 26 of my cycle, so a combination of sun and hormones seems to be creating a living nightmare for me!!!!

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Lisalou19
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6 Replies
kt11 profile image
kt11

I get the one on the right if I've been in the sun so I try to stay out of it as much as poss. Good luck Lisalou 😊

Lisalou19 profile image
Lisalou19 in reply tokt11

I’ve always been a sun worshiper but now a days I notice I generally feel exhausted after, painful feet and horrible face rash 😢x

kt11 profile image
kt11 in reply toLisalou19

O dear, sorry Lisalou😧. Do you use sunblock? There's a good one called sun sense from Australia, you could use a parasol as well xx

Lisalou19 profile image
Lisalou19 in reply tokt11

I am that stage where I’m trying to convince myself it’s not the sun. Have had clear skin all day, out in the sun for half an hour filling up a paddling pool for my son, and my face is horrendous!!!! Surely the sun can’t cause you to react that quickly can it? X

kt11 profile image
kt11 in reply toLisalou19

It could be heat rash, that comes on quickly, I hope you sort it out soon xx

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply toLisalou19

Hi Lisalou19 ,

If it is a photosensitive reaction caused by lupus it can take as little as a 5-10 minutes for some people to develop a rash. It is important to protect yourself from UV exposure. Our article here has lots of information and advice that you may find helpful - lupusuk.org.uk/coping-with-...

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