“Easy-BILAG: the new tool to record lupus disease... - LUPUS UK

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“Easy-BILAG: the new tool to record lupus disease activity”

DJK99 profile image
6 Replies

rheumatology.org.uk/news/de...

Hello. Me again. This looks interesting.... will have a read with my cuppa.. and thought you’d all like to see it if not aware. Just out on British Society For Rheumatology. Just had a scan through and looks excellent! Get your rheumy’s to read up and use pronto if appropriate.

Enjoy, keep safe as poss’ y’all!

D

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DJK99 profile image
DJK99
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6 Replies
Cathyan profile image
Cathyan

Thanks for posting DJK99, yes it was an interesting read. Looks like the original system took way too long to be practical.

DJK99 profile image
DJK99 in reply toCathyan

Yes -looks much more useful/apt/simples!

EOLHPC profile image
EOLHPC

😯Great Find! Been wondering what’s been happening with BILAG during the pandemic, cause i’m enrolled in the study, but haven’t had their usual annual questionnaires in the post. Good to know they’ve produced this really useful tool. Thanks v much for posting, D💞💞💞💞

DJK99 profile image
DJK99 in reply toEOLHPC

You're very welcome! I try and keep an eye on the Brit Soc of Rheumatology website as this is where so much of this sort of thing comes out I guess. Hope you're doing OK Coco. x

EOLHPC profile image
EOLHPC in reply toDJK99

🤩So Glad you’re on watch duty sharing this sorta info here 👏👏👏👏 it’s invaluable to those of us who get the best from our clinicians via reading the sorta Lit they’re reading! Am slogging away at this 🦓 life, day in & out playing specialist nurse + patient advocate on behalf of ‘my patient’ aka ME 😉…having infant onset 🦓ness is hard, but I hadn’t realised how tough old age could help it become 🙄! Hope you’re managing as ok as poss 🤝✊✌️🤞🍀

DJK99 profile image
DJK99 in reply toEOLHPC

Ditto Coco... xx

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