Following this week's debacle, I thought it would be handy to share people's experiences with this. My rheumy department today told me that they could not send me test results either by post or electronically owing to "data protection". I could only access them in a face-to-face appointment with my consultant.
My GP was somewhat taken aback to hear this and explained his understanding. Which was that the clinician ordering a test is responsible for making arrangements so that the patient is able to exercise her rights of access to any medical records, and that there should be a clear procedure to facilitate this. However, there is no single process that must be followed by all clinicians, and in practice, many services are somewhat lacking. The MDU advice for doctors is here themdu.com/guidance-and-adv...
It appears that for now, I must be content with awaiting a phone call from my rheumy who may (or may not) ring me to discuss my latest MRI and biopsy results.
Meanwhile, I have, by other means, managed to obtain my recent blood results (my ANA has gone up to 1: 2560 and CK to 2100 and I'm now "weakly positive" for ds-DNA - so that's about as good as I could have hoped for in the circumstances)
It would be good if others could add information about how to access test results etc... x