Got admitted into hospital for hypoxia but left w... - LUPUS UK

LUPUS UK

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Got admitted into hospital for hypoxia but left with diagnosis of diastolic heart failure

KellyRenai profile image
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Went to ER due to not being able to breathe in deeply my breathing was fast passed an heart rate dropping PCM is now on board with lupus an is sending me to rheumatologist an heart Dr also my 24 hour urine came back with extremely high amounts of proteinuria she said it all is pointing at Lupus she sent referrals off an switched some of my meds an I got put back on the dreaded Lasik I told PCM I just don't care what they call it just help me feel better that's when she said lupus does attack the heart an the kidneys in the ways I have an all my symptoms plus the anti double stranded dna she apologized for not seeing it before an not really listening to me but has faith we will get me started on meds that'll help me feel better an I proved photo sensitivity at this appointment I was in sun for 15 min an it looked like someone stained me red an it was stinging an itching she marked it off as positive for photo sensitivity so hopefully I've got her attention an can keep it long enough to get to where I need to be

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KellyRenai
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panda2 profile image
panda2

Phew! It's about time your doc got on board. What a lot you've been through lately. So glad to know the referrals and box ticking are underway. Hang on in there. P x

Freckle1000 profile image
Freckle1000

Ditto with panda2

Really glad you're finally getting closer to the respect and treatment you need.

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