Methotrexate and major hair thinning

[tamib0713]

I have been taking methotrexate 10 mg for 8 weeks. My hair is thinning each day. It has thinned by 40 percent. Anyone else have this effect, did it ever slow/ stop?

[PMRpro]

It isn't uncommon with mtx. Are you also on folic acid tablets? You should be and maybe you need a higher dose - the amount used can be from a tablet once a week to a tablet every day you don't take the mtx. That's quite a range - every patient and every doctor has a different response.

[Poshcards]

My consultant upped my folic acid to one every day except day of metho injection and it helped stop it getting any worse but it didn’t grow back any thicker x

[Melba1]

I’m starting it next week and my rheumy said he’d up the folic acid if my hair fell out too much.

Sorry it’s happeming to you. I think some drs don’t think it’s as important as it is to us compared to saving our lives and organs but it’s very important to us. I’ve lost a lot of hair in a recent flare and feel that sense of dread every time I wash/ brush it.

X

[tamib0713]

Oh yeah, I am taking 1000 mg folic acid a day! Thanks so much for replies, helps to not be alone

[Paul_Howard Partner LUPUS UK]

Hi tamib0713,

We have an article on our blog about hair loss in lupus with lots of information and advice that you may find helpful. You can read it at lupusuk.org.uk/coping-with-...