Oral hygiene on point but always need dental treatment at each visit !!!! Can this disease attack your gums too I wonder !

[Lisalou19]

Every day I brush my teeth at least twice a day, some times more. I use a mouthwash and floss daily too.

Unless I put my mouth in the washing machine, I can’t be any cleaner

But every time I go dentist I have gum disease, not always in the same place either. Dentist is confused too as he said he can see how clean I keep my teeth.

I have receding gums on one side of my mouth, which is shocking really for a 37 year old.

I am wondering if this happens to others too. If my hygiene was poor I would completely understand

[overnighthearingloss]

It might be the other way around.

youtu.be/stDDmsOI1l4(Not working as expected?)

I have followed Dr Levys vitamin c advice and it's appears true. Maybe the rest is as well

[overnighthearingloss]

youtu.be/Fg90W7KevCs(Not working as expected?)

Might be a better link

[Lisalou19 in reply to overnighthearingloss]

What form of vitamin c do you take?

I believe everything is worth a try

X

[ShannonB]

I have the same issue and have since I was young. I was diagnosed with lupus at 12 and I have Sjögren’s syndrome. Dentist says gum disease is often more pronounced w sjogrens due to dry mouth. So I definitely think there is a lupus connection.

[Lisalou19 in reply to ShannonB]

I do constantly have a dry mouth!!!!

[Bebe76 in reply to Lisalou19]

Dry mouth can definitely cause issues - you should mention this to your dentist. You can try using products that contain xylitol to increase saliva production. Your dentist will have other recommendations as well. Some medications can cause dry mouth, but it could also be related to autoimmune disease.

[charmaineholmes]

Hi I have the same problem dentist has advised me to get a jet flosser waiting for it to come ordered on Amazon so not sure if it will work but it worth a try .x

[rubyred]

Hi Lisalou, I would ask your Dentist to refer you to a periodontist. They specialize in gums. They do an extra3 years at dental school. I also have gum disease and have learnt that a scale and polish or your regular cleaning is not enough for gum disease. The issue is below the gum line. The periodontist work on a quarter of your mouth at a time. They need to do what’s called a deep clean. You can never get rid of gum disease until the tooth is removed. You can only ever halt it with the deep cleaning. You may find that your practice doesn’t offer this on the NHS. By the time I learnt this information it was too late for me I went to a private periodontist. Then went for a second and third opinion. Because I wasn’t aware and my dentist just said I needed to floss more I have lost all of my teeth. Also with Sjogrens you should be given more frequent appointments with your dentist. Good luck my lovely and I hope your dentist can refer you to a periodontist xx

[Lisalou19 in reply to rubyred]

Wow did not realise it could get this bad!!

Seems many suffer this. I find it disheartening that all I do is not protecting me!!!!

I’ve got a hygienist booked for next Friday , I will ask them about referral

X

[creaky]

I have SLE with secondary sjogrens, causing a very dry mouth, particularly at night, I seem to be lucky as my gums are in good shape at the moment, dentist says that he doesn't know what I'm doing, but keep doing it!

I brush regularly with an electric brush, use corsydol mouth wash daily and floss daily. I use xylimelts now at night, to combat my dry mouth and stuck sugar free sweets after meals to increase saliva production, (I can't abide chewing gum!)

Try doing everything you can to increase saliva production, especially after meals and at night, good luck 🍀

[Lisalou19 in reply to creaky]

Just ordered some xylimelts. Thank you for sharing this with me.

[creaky in reply to Lisalou19]

I will be interested to know how you find them, they changed my life! 😀 x

[leslieliesel]

My husband has Sjogrens, his pearly white teeth have turned just awfu can not describe the color..roots are strong but the enamel is all but gone..he will be getting crowns he is 62..is dentist said he has only seen 4 sjogrens patients in his practice..my husband is the only male. I have Subacute(?) Lupus..I have great teeth..I am so afraid the same will happen to me..I am 63

[Lisalou19 in reply to leslieliesel]

My dad has RA. I’ve always thought his teeth look pretty different in colour and shape. These diseases obviously cause oral problems !!!!! On top of everything else

[Cann]

I had this for years-all my life in fact, but the last occasion the dentist said my mouth is the healthiest she has seen it.

I had all my amalgams removed 10 years ago and gradually all the metal pinned crowns out and at last I find my mouth feels better.

My body just doesn't like intervention and I feel it was wrong for me to go to the dentist when young and been given amalgam fillings that are toxic to the body and crowns.

I have a dental plate at the top, but I can take it out to clean it and don't get infection through crowns any more. As the mouth changes with age, crowns can be open to infection. I couldn't afford to have them re-done and actually just wanted them out of my mouth.

[Lisalou19 in reply to Cann]

I only noticed this morning , the side I keep having problems with is the only side I have metal fillings!!!!

[Cann in reply to Lisalou19]

Interesting!

[maye1]

I read somewhere that it can happen because of systemic inflammation. I’ve had dry mouth and wondered if that was causing it. I’m addressing inflammation now with medication and diet. I’ve completely cut out sugar and switched to the Wahl’s diet - hoping nutrient increase will help. Heard cod liver oil, vitamin c, and unpasteurized dairy also help. I’ve noticed that my teeth feel stronger since starting on unpasteurized dairy.

More frequent visits to the hygienist or periodontist, as someone suggested, will help, but I’d look into what’s causing dry mouth and decreasing the inflammation.

Are there dentists/periodontists who are more experienced with AI patients?!?

Hope that helps

[Lisalou19 in reply to maye1]

Booked to see hygienist on Friday. Hoping I can get some extra advice x

[Lisalou19]

Thank you xx