Hello everyone!

[Patricia2015]

I have not been on this wonderful forum for a long time. I had my personal and medical struggles and that prevented me from having energy to post here.

I hope everyone is allright or at least keeping strong!

I still have an UCTD diagnosis (since 2014) and my unknown collagen disease is getting worse. I got two newly discovered symptoms: blue sclera, see picture (is anyone familiar with this?) and slightly parrot beak nails on my thumbs, indexfingers and middle fingers. My GP just suggested to Google these symptoms.

Unfortunately I got diagnosed with severe endometriosis (DIE) in June 2017 and after long consideration and because of extensive adenomyosis I will get a major operation on March 2nd. I will get a hysterectomy and the endometriosis will be cut and burned away. Rationally I agree with the hysterectomy but becoming a mother is now very very far away 😢. My hubby and I look for a surrogate now.

So no good news but I am still hanging on and trying to be strong. Still able to work athough have increasing amount of sick days.

[Barnclown]

Oh patricia: am v glad to see you here again...have missed you, but i am very sad the endometriosis is so severe! Am greatly feeling for you and your husband! You have been through so much...and continue very brave and strong in the face of everything. I think you’re amazing!

Am going to double check, but can’t blue sclera be a sign if a particular type of Hypermobile Ehlers Danlos Syndrome (alongside other signs & symptoms)? I think blue sclera signals other conditions too, though.

🍀😘🍀😘🍀😘 coco