I realise we are different in our response to meds but I know people have so much more knowledge than the leaflet I've been given. I was diagnosed last September with SLE and given hydroxy. I was not seen until now and have been given Azathiopine, desunin,pregabalin, and Amitriptyline. It seems the lupus has gone mad in such a short time! I am having to work 3days a week and need to make sure I time things well to reduce the chance of having side effects at work. I have also been diagnosed with fibro .im struggling at the moment and can't bare the thought of more symptoms!! Thank you . Ps how often am I ment to see the rheumy?
Last edited by tallytutu
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