Will this get wings?: Hi. Tessie here! Can you... - LUPUS UK

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Will this get wings?

Tessie62 profile image
10 Replies

Hi. Tessie here! Can you relate with this? I'm curious if a butterfly rash develops gradually before growing wings?

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Tessie62 profile image
Tessie62
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10 Replies
Jodirae profile image
Jodirae

I have the same thing...red nose but no wings. Have had it on and off for the past year.

Tessie62 profile image
Tessie62 in reply toJodirae

Same here. On and off. Is it part of having Lupus or something else? Anyone out there know?

Me too. It does get wings sometimes but they are Sjögren’s wings rather than Lupus. Maybe Rosacea?

Tessie62 profile image
Tessie62 in reply to

That's curious. I've been dealing with dry eyes and mouth for years. It sure makes sense.

Sami1982 profile image
Sami1982

I've got small wings but my nose is pretty clear - so far!

Tessie62 profile image
Tessie62 in reply toSami1982

Hopefully it doesn't get any worse either.

MsGelfling1 profile image
MsGelfling1

Hey Tessie. I never got the wings, either. My doctor put me on Plaquenil and the rash went away and hasn't come back yet. I hope something like this would help you.

Tessie62 profile image
Tessie62 in reply toMsGelfling1

Thanks for responding MsGelfling1! I may need to mention that to my doc.

Mbminges profile image
Mbminges in reply toTessie62

I've had the face rash for years even now on plaqunil.

Tessie62 profile image
Tessie62 in reply toMbminges

Mine's not so much a rash but more of a 4 o'clock midday occurance. A low-grade fever comes with it. Does Plaqunil have any negative effects? Thinning hair for example.

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