LUPUS UK
21,421 members16,956 posts

A little about me

Hi I am new to this . I found out January 2017 I have lupus . I am 35 year old mom of 2 kids . It Has been a real struggle working full time and not Having the energy to do much. after I come home I can barely walk . Lupus has impacted my life I have been looking for a doctor who can get me to feel better cause living life with pain 24/7 is not fun .

5 Replies
oldestnewest

Hi, :) so sorry that you're going through this. I went through it 20 yrs. ago after the birth of my first child. It gets better. Get a good rheumatologist, go gluten free, lacrosse free and sugar free.... Stevie is ok... also exercise if you can.

2 likes
Reply

I meant lactose free :)

1 like
Reply

Hi - sorry to hear you’re finding this hard. I too went through this after the birth of my second child and like you struggled with working full time, looking after 2 children and managing the pain and fatigue. My turning point was getting a rheumatologist and starting the right treatment. It took many weeks for the hydroxychloroquine and NSAI to make a difference- but they did. My children are now 25 &27, and although I still get fatigued I’ve been able to continue working full time and have the joint pain under control. A good rheumatologist, the right drug regime and understanding your symptoms and triggers will help get you through. Wishing you well x

1 like
Reply

Hi Cintronc1

Welcome to our lovely forum. I am truly sorry to hear that you are in so much pain. I know that a few others will come along to welcome you and help give you any advice that they can. I know it can be really difficult when we are in pain and having to do our everyday tasks and especially looking after our children.

We are all here to try and help you even if you just want a good old rant or even a joke or two. I truly hope that you are managing the best you can. Maybe try and see a good rheumatologist they should be able to help you with your pain and get you on the right pain management.

I hope that you have had a good weekend and your are managing your pain. Take good care of yourself sweetie. Love and hugs 🤗🤗🤗🌹🌹🌹xxx

3 likes
Reply

Hi Cintronc1,

Welcome to the LUPUS UK HealthUnlocked Community!

Are you able to ask for help from a family member or friend? It is important to not push yourself too hard as stress can be an important trigger of lupus. We published an article on our blog about stress management and relaxation which I hope you find useful: lupusuk.org.uk/stress-manag...

Fatigue is one of the most common symptoms of lupus; it affects around 90% of lupus patients. We published an article on our blog about 'managing fatigue' which contains helpful tips and information which I hope you will find useful lupusuk.org.uk/managing-fat...

Having someone to speak to can help improve your overall wellbeing as well as help you cope with certain situations which can be tough. If you would like someone to speak to, I can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk with your name and address.

To read our blog article on ‘pain management’, click here: lupusuk.org.uk/pain-managem...

Please keep us updated, wishing you all the best.

Reply

You may also like...