I just had an appointment with a rheumatologist and she suggested that I might have lupus. I get sun burn like rashes across my nose and cheeks that come on quickly and go away after an hour or so, and some other rashes and hives too (I had a scaly, patchy red rash under my armpits for 3 months that wouldn't go away). I have joint pain, fatigue, sores in my nose and have had a few sores in my mouth, and cold purple feet and cold blue hands (although my dysautonomia could be contributing to the purple feet). I also have livedo reticularis on my hands that I showed the doctor. The only thing that came back abnormal on my labs was my bilirubin level. The normal range was 0-1 and I was 1.3. My red blood cell count wasn't abnormal per say but it was toward the lower end of the reference range (reference range was 3.9 to 6 and I was 4.3). I was reading that elevated bilirubin can be a sign of autoimmune hemolytic anemia, which lupus can cause, but the RBC would usually be abnormal if you had it. I had a negative ANA and my CBC looked normal. Is it possible to still have lupus with these test results? Should I be getting blood tests done every few months now that we know I have symptoms of lupus and this elevated bilirubin level which can be associated with liver disease and autoimmune hemolytic anemia? If my doctor isn't concerned, should I find a new one?
Sorry if you're not supposed to ask for advice about these kinds of things here. I'm just a little concerned and haven't heard from my doctor yet.