I just wondered if anyone can identify with this problem? I find now that many fruits, especially grapes, (I could make a long list of fruits but will not bore you) have become bothersome in that, my gums puff, the skin from the roof of my mouth shreds, and then, perhaps within the day or day after I develop a very sore mouth. My tongue feels burnt and swollen and has the shape of my teeth in it. My tongue looks like my mother's pie crust decoration! And it feels like its just a bit too large for my mouth. I have ulcers appear on my tongue and palate and quite literally it is a pain. I feel unable to supplement my diet with anything in its raw state anymore. It puts me off trying to eat any fruits. I eat plenty of vegetables but find my diet becoming very limited, unadventurous and downright boring.
My hypersensitivity to all things perfumed is also through the roof. Anyone wearing perfume, deodorant and aftershave etc makes my mouth tingle and burn and causes nasal congestion. I feel as though I can actual taste it on my tongue. I do take anti-histamines and have a steroid inhaler (the smells make me breathless too. I have asthma). Not only that, but it makes me feel dizzy and lightheaded. The locum GP I visited today asked me- "what would you do if I told you there is nothing I can give you to alleviate that and you have to live with it!" I was taken aback to be perfectly truthful and found his bluntness a tad rude and dismissive. I said to him that it does impact on my ability to be around people and that 'avoidance of triggers' is nigh on impossible! I dared to ask if my sinuses were possibly affected and causing the reaction to the smells and dizziness, headaches etc. He nodded and muttered something about 'a possibility' He then suggested I visit the dentist to see if there could be anything related that's causing my oral problems. I do have an appointment at the Leeds Dental Hospital in November so I will ask at my consultation. Obviously there is 'nothing that can be done' to help at the surgery.....
He examined my ears to see if there was a problem that could also be contributing to the dizziness. "Mmm, very blocked with wax. Put olive oil in three times a day and if it doesn't improve come back and we will syringe it!" Examined mouth. Apparently nothing untoward and the ulcers are 'quite small' I wanted to say - "size is immaterial, they are still painful as hell!"
And unfortunately I am still here floating around in the 'undiagnosed' ether. Hanging by a thread on the 'wait and see' diagnosis. Daily!
Thanks for reading. x