September's Topic of the Month - Getting Diagnosed with Lupus

[Paul_Howard]

Our blog article for September about getting diagnosed with lupus has now been published.

lupusuk.org.uk/getting-diag...

Thank you so much to everybody who submitted their tips and experiences to help us write it.

[Treetop33]

Good post. Will be brilliant for people in that confused, I don't know what's happening to me, state.

[Robin1974]

Well its official i have Lupus, my Consultant Prof. K. Davies is happy to be the Lupus UK consultant in the SE. He is well known by Lupus UK and is very happy for me to suggest him for any with Lupus and be the coordinator for both Lupus in the SE and for anyone in Mid Sussex with Sjogrens even though l don't have it as l have been misdiagnosed so many times, he thinks my Knowlege of Sjogrens will be up to Consultant standard. As I have a very rare type of Ehlers-Danlos, he is happy for any zebras in the area to talk to them he will even come to my house to chat about Ehlers-Danlos. I dont wish to step on znyones toes as l know there is a large group in Brighton and a new group in Mid Sussex. I am a member of the BSSA Lupus UK and a life member of Ehlers-Danlos UK. I run a facebook group on behalf of the BSSA, at their Presidents request. Its called British Sjogrens/SLE/APS/EDS