Recently diagnosed with lupus

[Cheeselove]

hi I have recently been diagnosed with SLE and struggling with it at the moment . I have had symptoms for a very long time but it went undiagnosed . After been given my medication Some symptoms have improved but not all of them .

[lupime]

Hi cheeselove. Welcome to the forum, it is a very supportive place. Most of us have had long journeys before diagnosis and some are still searching. This place is a mine of information to help you on your journey.

[svfarmer]

Hi Cheeselove - love your username , I take it you love cheese- welcome to the forum, what symptoms are you struggling with at the moment ? Xx

[Debbie_kinsey Administrator LUPUS UK]

Hi Cheeselove

Welcome to the forum! Unfortunately it taking a long time to get a diagnosis is a common experience that I'm sure many people here share. A new diagnosis can be a lot to process in terms of what it means for you and your life. If you ever have any questions or would like to connect with other people with lupus in your area, you are always welcome to give our helpline a ring (01708 731251), post a question on this forum, or send me an email at [e-mail]

Take care

Debbie

[NewLupusdiag]

I’m also recently diagnosed

As devastating as it was to get the diagnosis it was also a bit of a relief . The stuff I was experiencing finally had a reason. There are treatments and understanding

So while you can feel a bit overwhelmed and alone…you’re not alone now..there’s whole communities of people with lupus that get it

I googled and obsessively read every thread when I was diagnosed but just remember no two people have the same experience. I was petrified at some of the stuff I read

But I’m lucky…I’ve (so far) a mild case that I’ve managed up to now without major incidents. Waiting on blood results but secretary said there was nothing alarming so I’m taking that as good news

So take it day by day and remember you’re still the exact same person you were before the diagnosis

[MusicalFurbaby]

Welcome Cheeselove! Sorry to hear of your long-term symptoms and the shock of your recent diagnosis. It can take such a long time to get properly diagnosed, that for many of us, reaching the point of diagnosis is quite a relief. For me, it gave me clarity and confirmation, not to mention a name for the madness with which I had been living!

Glad to hear you have gained partial symptom relief from the medication. My meds also give me partial relief: they helped with rashes and sores, but did nothing for the joint pain or fatigue. We’re all so very unique, we never know how lupus or meds are going to affect us!

How long did it take you to get your diagnosis? Mine took 8 years. We’re here for you, and we understand.