night sweats: anyone else have runs oif night... - LUPUS UK

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night sweats

moss profile image
moss
12 Replies

anyone else have runs oif night sweats mine are shocking

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moss profile image
moss
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12 Replies
Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Moss,

There was a blog about this a while ago. You might like to take a look at it - lupusuk.healthunlocked.com/...

welshsuz profile image
welshsuz

iam getting mine all through day and night hun i dont know if its because i have fibromyalgia as well as lupus and is getting fed up of changing my clothes i havent been out for over 3 weeks because of it nothing worse than seeing a lady with sweat running down forehead, side of face and neck plus everywhere else but people cant see that i did go on clonidine but nothing didnt work my gp said there is medication for it but because iam on warfarin i cant take anything else iam truely thinking of taking myself off it so i can try something as at the moment iam so low and feel like i havent got a life anymore

LesJames profile image
LesJames

Your question is timely. I have developed nights sweats recently, and last night I had two bad episodes where I was drenched and was going to pose the question. So in answer to your question yes!. I shall read the above mentioned article next.

Thanks Les

IMillar profile image
IMillar

A couple of years ago I had night sweats (nothing during the day) but last summer a blood test showed I was perimenopausal. Apparently menopause can start early in SLE. i am only 42 but they will not give me HRT as my risk is too high. Night sweats have now stopped. Good luck.

Lulabelle profile image
Lulabelle in reply toIMillar

Same here! I am also pre menopausal and my mum started her's at 24yrs I started at 38 and I am now 40yrs. My periods were so regular, every 28 days but now they are a little haywire - apparently I am a bit of a nightmare to live with lol! The other half is relieved when it is happy week lol!

junbuggi profile image
junbuggi

Hi, this is my first post here. I've been having a bit if a run of them this week. I am showing twice a day. I wake up in the middle of the night and need to change my t-shirt, blow dry my hair at the back of my neck and change the part of the bed and pillow I'm sleeping on.

I have had this problem before, it happens every so often. And my body temperature just can't get right. Hope yours stops soon. Thank god for hairdryers I say.

junbuggi profile image
junbuggi

Oops, showering...darn auto correct.

I too suffer this so i feel for you...at first i just put it down to my time of life !!HA HA,,But this can't be the case everynight!I try to wear cotton materials next to my skin,i find i don't get so hot and itchy with it then,Hey,,what we have to put up with eh!

helentad profile image
helentad

Hi, I have them sometimes only at night but some in the day as well, but then when it gets warmer just forget it (If I go out I take baby wipes, a towel and a change of clothes). When I get a bought at night I tend to sleep on a large towel (or 2) and have a blanket rolled up at the side of me. When I wake ringing wet I take out the towel and roll the blanket over, I wake later and throw the blanket off. It helps sometimes. Best wishes

moss profile image
moss

mine are always on a night. it s so nasty waking up and the bed is wet and cold. get sick to death changing the whole bed. i can nt stand sleeping in it the next night

Jaxqueline profile image
Jaxqueline

Yep I get the sweats too but shivering and goose pimples at the same time. I wonder if I will know when I hit the menopause.. I am 47 and gp has put me on mini pill to stop periods as hormones seem to make a big difference. My question is how will I know when I hit the menopause. In the meantime, lots of bargain pjs from Primark. take care. Jx

panther50 profile image
panther50

I suffer from this too asked my rheumatologist about it, she thought it was something to do with the general inflamation lupus causes. When i was having a bad flare up i noticed I would sweat and burn over certain joints at night, then those joints would be the next ones to be affected and painful the following day. Horrible-its like my thermostats knackered! I find I can actually be freezing cold and burning hot at the same time.

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