Pain

[Lisa-]

Hi I'm new to this currently had lupus nearly 2 years now still isn't under control pain is mega bad got put on naproxen along with tramadol and paracetamol for pain relief but isn't working what else can I do as I'm not sleeping 😴

[Ianrussell69]

Sorry you are in so much pain I myself have been on tramadol for about 10yrs when it's bad in the day and I know it's going to be bad at night they gave me natriptalin which seem at be better than amitriptalin as it makes me far less drowsy when I take these I get a full nights sleep for the last 4/5 days been getting up at 4/430 as I can't lie in bed and don't want to wake the wife as you know it's a double whammy you are awake but sleepy and board hope it settles down soon for you

[Bebe76]

If you are still in a lot of pain, your lupus medications may not be working for you. You should consider discussing a change or increase of your lupus medications with your rheumatologist.

[whisperit]

Hello Lisa,

Is that all your medication? If you have a diagnosis of lupus, it's quite usual to be prescribed a DMARD (disease modifying anti-rheumatic drug) which reduces symptoms by altering the disease process rather than simply treating the symptoms.

If you are still suffering 2 years in, it might be that, as Bebe76 says, the most useful thing you can do is to discuss your medication with your specialist.

Hope things improve soon x

[Chanpreet_Walia LUPUS UK]

Hi Lisa,

Welcome to the LUPUS UK HealthUnlocked Community!

We offer a free information pack that contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. To download or request our information pack, please click here: lupusuk.org.uk/request-info...

I am sorry to hear that you are feeling poorly, are you taking any other medication for your lupus? Has your consultant considered changing them to help manage your lupus better?

We published an article on our blog about pain management, the blog contains tips and information that I hope you will find useful: lupusuk.org.uk/pain-managem...

Regular exercise helps to improve sleep quality. Exercise should be done at least a couple of hours before going to bed; otherwise the mind may be too active, making it more difficult to sleep. We published a blog article on exercising with lupus which you can read here: lupusuk.org.uk/lupus-and-ex...

The NHS Choices’ website provides information on sleep hygiene which I hope will be of use to you: nhs.uk/LiveWell/sleep/Pages...

Please keep us updated, wishing you all the best.