This is my first post on this amazing site. I have just been diagnosed with lupus of the central nervous system with probable lesion on the spinal chord. It's taken a year to diagnose which I know is quick compared to others. I keep being told I'm very unique which is not what you want to hear. I have chronic pain down the right side of my body and have done for a year although in the past 3 weeks my left leg is starting to ache. I have been on a plethora of different meds which mostly have not done anything. I'm currently on hydrochloriquine, omeprazole, vitamin D, tarpentadol and nortryptaline and I'm still in pain. Saw my second neurologist this afternoon and he is ordering me a lumbar puncture and sensory tests as soon as possible as he believes all the meds are masking the problem which I believe too. I have had 3 MRIs which have come back clean but my blood has the lupus antibodies. I can't do anything physical as it makes the pain worse. Has anyone had any experience of this? Any advice greatly welcome. I'm exhausted and tired of telling people I'm in pain when people ask if I'm ok. Thoughts?