mycophenolate- skin: It's very sad to say because I... - LUPUS UK

LUPUS UK

32,248 members28,608 posts

mycophenolate- skin

Danisea profile image
5 Replies

It's very sad to say because I feel I am being superficial. However, my sister being the most humble and kindest person I know has had lupus for about 6 years. We both have light skin, we are twins and now her whole body is black. The strange thing is that the doctors don't say anything and don't care. I don't have anything against dark skin, but she wasn't born that way. I guess if she were white and then turned black doctors would be more helpful.

Written by
Danisea profile image
Danisea
To view profiles and participate in discussions please or .
5 Replies
whisperit profile image
whisperit

How do the doctors respond when you/she asks them about it? Have they said it is a drug effect - skin darkening is also seen in some disease processes? I guess if it is a drug side effect, they are judging the positive effects of the medication outweigh this. If it is causing your sister distress, do encourage her to speak to the doctors about it a bit more x

nanagill profile image
nanagill

As whisperit has mentioned, maybe your sister needs to find out if it is effects of meds or to do with illness. If it's effects of meds I think if it were my sister I'd just be so thankful that she's still here for you to enjoy her company. None of us leaves this world the same as we arrived :)

Danisea profile image
Danisea

Thanks for the replies! I know she has asked about it. Not sure the response. As one of you have said, I think she is just happy to be alive because last year she was so bad she almost died. It could be a mixture of things. The meds, kidney problems, or even just a reaction. I will ask her to mention it to the doctors again. Right, we don't leave this world the same. 🙏🏽 Whatever the reason, I admire her and those who have suffered and are suffering!

maggielee profile image
maggielee

Illness amongst twins can be hard and you sound like a very caring twin which your sister needs and raising concerns can be helpful and your understanding of her illness can help you help her. I am part of a number of twins in my family and my twin is the most supportive of all my family and it's help to have her talk to me and ask questions so I have a better understanding of lupus. Wishing you both well. 👯 ML

Danisea profile image
Danisea

Yes, being a sibling in general can be hard. Having support is a must. Hope you get well! Thanks

Not what you're looking for?

You may also like...

How to dress for skin lupus, black or white color to block out the harmful sun light?

I diagnosed for skin lupus a year ago. Doctors say I have to stay out of the sun light or the...
kimc profile image

itchy skin

how does anyone cope with itchy skin i feel like i have blisters under my skin i"m on losartan...
carollesley profile image

Mycophenolate question

I have been on mycophenolate for two weeks, I have had a cold for weeks which seems to finally be...

Daughter - Facial Rash Update

Hi all, further to my recent posts, we saw the paediatric dermatologist today. Doctor has done some...

sensitive skin

I haven't been diagnosed with Lupus, although I have several of the symptoms. But when they test me...
SassyZee profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.