Crazy day

[LouLamb]

This morning I went to the citizen advice to write my mandatory reconsideration letter. The lady told me to prepare for an appeal as they never normally change their minds . I started of today feeling crap basically . Just going over what I can't do made me think what kind of life am I living at 17 .

I then went to my aunties and played mario cart on the Wii with my cousin. Later on my Aunty rang up asking if i wanted to go to Pizza Hut I said of course . I went with my cousin and her boyfriend and my Aunty and uncle . I had such a good laugh . I came home and actually felt normal for once .

It's crazy how with this illness I felt bad this morning and ended the day feeling like a non lupus person . It just shows me that no matter the tough days some days I'll be able to do things . 🙂

[Wendy39]

I'm so glad you ended up having a lovely, fun, normal time today! Those moments are precious. And laughter really is a great medicine. The memories of the good times also keep you going through the tougher days. Hopefully you have more good days than bad ahead of you. Never give up hope. x

[LouLamb in reply to Wendy39]

It really does help the good times . This past week I've been just feeling like crying . I don't know why . This has really helped bring me out of that x

[Wendy39 in reply to LouLamb]

We all get down for one reason or another. Lupus. Stress. Hormones. Etc. And sometimes we cancel plans as we don't feel we can put a brave face on. But if I'm feeling in a low mood, more often than not time with my family & friends will put a smile on my face. It reminds you that people love you and care about you. X

[Ianrussell69]

Glad you had a good day we all need to go out more often although I know it sometimes mean we have a rough couple of rough days I took my methatrexate injection Friday out all day sat out most of day sun had a great time with family did almost no work but managed to turn up Monday (I'm self employed so so tend to go in when really should not ) you are young and should be going out has your rumi consultant sorted any Meds out for you ?

[LouLamb in reply to Ianrussell69]

I am only current taking hydroxy (when I remember ) . It didn't make any change with pain but I noticed my fatigue changed . Not a lot . I use to be a sleep at 8pm or earlier every night. Now I'm asleep by 9pm every night

[Ianrussell69]

Set up an alarm on your phone when you take it as prescribed it makes a difference I was told it could take up to 6 months to see any benefit though I've set alarms for hydroxy folic acid and methatrexate injections if I didn't do this I would forget for sure

[LouLamb in reply to Ianrussell69]

I think about the tablet and say I'll take it later then I forget . I think I will do an alarm . I take it whenever I remember normally . So I might set an alarm to take it at half 6 every night

[Ianrussell69]

I definitely works for me