I have recently been experiencing a raft of symptoms which have left me confused and hoping that others can shed some light on things. First, for the past 8 years, I have experienced a huge downturn come mid October, worsening to the end of December, then gradually improving with longer hours of daylight (I'm in Scotland); is this something some with Lupus experience? Second, dreadful and unusual upper back/neck/arm pain - rather like a trapped nerve combined with muscle pain, which I put down to a 'bad back' until it went overnight at which point my gut started playing up - appalling stabbing pain to the right of my stomach, along the edge of my ribcage and down; 'old plumbing' sounds from my bowel; not being able to eat; on/off nausea; a feeling of needing to pass wind but nothing happening, etc. I went to the doctor, who checked me over, said I probably had an irritated stomach (really?!) and told me to take a proton pump inhibitor. Afterwards I wondered if this isn't all connected with Lupus; I was only diagnosed in August (along with Hughes Syndrome) and am very much in the learning stages about the basics. Anyhow, I didn't take a PPI but first tried Peptac 90 minutes after eating - which seems to have helped. Can others relate to any of the above? Is this symptomatic of a flare? If so, should I be pushing to see the rhemy? Or am I likely looking at two separate things here? If so, could Plaquenil (which I am having real problems tolerating - have been taking 200mg every other day but building up from this is proving extremely difficult) be responsible for the gut issues? Any advice gratefully received!
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