Lupus sunburn : When you have lupus do you get... - LUPUS UK

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Lupus sunburn

jensen_lynne profile image
16 Replies

When you have lupus do you get sunburns easily? I got sunburn in like 10-15 minutes from being in the sun, I don't remember it happens that fast

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jensen_lynne
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16 Replies
alija1001 profile image
alija1001

Yes just a bit of sun and my legs go spotty. I use factor 50 all the time.

Lupiknits profile image
Lupiknits in reply to alija1001

Factor50 all year round is my rheumy's advice.

Treetop33 profile image
Treetop33

I get sunburned easily and also get a bit rashy if I've been silly and forgotten the suncream. Even with factor 50 my hands and feet get really hot and feel like they are burning if I so much as go outside for a period. I guess that's the Lupus, though I've had intolerance to sun and heat for a long time (recently diagnosed).

jensen_lynne profile image
jensen_lynne in reply to Treetop33

Do you get very tired in the sun heat too?

Treetop33 profile image
Treetop33 in reply to jensen_lynne

Yes very. I try to stay out of it.

jensen_lynne profile image
jensen_lynne in reply to Treetop33

Same way, I get very tired too, I yawn a lot that my eyes water, is that the lupus?

Treetop33 profile image
Treetop33 in reply to jensen_lynne

No idea really. But heat and sun isn't great for Lupus.

jensen_lynne profile image
jensen_lynne in reply to Treetop33

Lupus sucks, does the sun gives you a rash too?

Willing2getWet profile image
Willing2getWet in reply to jensen_lynne

I was diagnosed

with Lupus, however, I have Thyroid Disease,

I am on Synthroid but my Rheumy

and Endocrinologist both agreed that it is all from the Autoimmune Syndrome.

willowwag profile image
willowwag

Hi Jensen Sun is a big factor for me I have to be very very careful, medications and Lupus can both make you super sensitive to the sun and its UVA and UVB. The other week I only drunk my cup of tea outside for 10mins and I was like if someone had burnt me with a blow torch. Hydroxy can also make you alot more sensitive and steriods . Hope your doing ok.

jensen_lynne profile image
jensen_lynne in reply to willowwag

Does the sun heat make you very tired too?

Ianrussell69 profile image
Ianrussell69

Just got back from a day out been covered up all day long sleeves hat factor 50 wife said you've really burnt and yes it's sore I should no better joints will prob hurt tomorrow !

jensen_lynne profile image
jensen_lynne in reply to Ianrussell69

I was in the sun and I got sun burn in 10 minutes

jensen_lynne profile image
jensen_lynne in reply to jensen_lynne

I put sunscreen on

Dan30cr profile image
Dan30cr

Is it on your face? As sometimes the Malar rash from sun exposure can look a lot like sunburn but it is infact the rash. Took me a while to realise and notice the difference. Made it easier as I have the rash in winter as Well when is overcast...

Hope this helps

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi jensen_lynne ,

Exposure to sunlight/UV is a common trigger for lupus activity and a photosensitive rash often occurs. You can learn more about this and how to protect yourself in our article here - lupusuk.org.uk/coping-with-...

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