Hi is anyone on mycophenalate for lupus? If so what dose?
I started on 500mg once a day and now I'm on 500mg twice daily. Is this the max dose for lupus or can it go higher? I felt good initially but as I've posted too, my wrist is really bad at the mo so had to up my steroids.
Thanks
Yes, in treating lupus, Mycophenolate Cellcept daily dose can go higher than 1000mg per day
My therapeutic daily dose has been 1000mg daily (500mg a.m. & 500mg p.m.) for several years as part of a daily combined therapy treatment plan including hydroxy 400mg + prednisolone 5mg (increasing up to 10mg during my typical flares) + amitriptyline 20mg. My lupus clinic tells me a daily dose of 1000mg myco is a "moderate" dose.
Originally, I'd been expected to need 2000mg myco daily, but I responded so well to 1000mg that we left the dose at that. I know other lupus patients on 3000mg myco daily. My treatment plan meds are reviewed regularly with a view to making adjustments to doses as necessary.
Am sure you'll get many good replies
Hope your wrist improves soon
🍀🍀🍀🍀 coco
Hi there, I take 1000 of a morning and 1500 of an evening. I also take 400 mg of hydroxy and 10 mg of prednisolone. I have been on this for a number of years now and it seems to be helping.
Hi dear. I guess it depends on your response to the medication... last year I started taking 3 tablets of 500mg daily. Now I'm just taking 2 but my rheumy says she ussually gives just 1.
Good luck!
I take 1000 mg daily of the Myco. 2 - 500mg tabs in the morning. See my Rheumy in October and hope to reduce or get off this drug then. Also take Hydroxy 200 mg in the morning. I also take a blood thinner 20mg Xarelto as my Lupus throws clots. I was diagnosed in August 2013 and am stable now. Have not had a flare yet and hope never too. My Rheumy calls me his poster child for how the meds are supposed to work. I still tire easily by mid afternoon and some stiffness and pain in the morning but all very manageable.
Hello. I'm on 3g a day. So 6 x 500mg a day. I take 3 tablets in the morning and 3 in the evening. I've been on MMF since last July. I built up from 1g a day to 3g over about 5 weeks. I wasn't well at all and was so relieved I was offered another drug to try to control my symptoms. I seem to tolerate it very well. It's has certainly helped me, just took a few months for me to be able to see it. It generally seems to have good reports. I also take 2 x 200mg of Hydroxychloroquine a day and have now started mepacrine too. If you have any other questions, please ask. Happy to help. Wendy
Mycophenolate and infections
Help wanted 
